Monday, November 15, 2010

Revolutionary Book--And it's 33 Years Old!

I finally got around to reading a book that has been sitting on my shelf for years: Jerry Mander's "Four Arguments for the Elimination of Television." It discusses radical ideas that you've never heard before because, well, they couldn't be discussed on TV.

Written by a former ad exec who started the first ad firm to cater to nonprofits, Mander wrote a formidable tome, pulbished in 1977. It is sweeping, going far beyond TV, into the basic building blocks of our modern society. For example, Mander writes of how the modern person doubts her experience, her intuition, her feelings. She looks to "experts" to tell her such things as "Mother's milk is good for babies" or "Stay healthy by eating fresh fruits and vegetables." These are things that our experience should tell us, but we need experts to give us cues.

He also writes of the modern world as a sensory-deprived environment. Instead of walking through forests that are teeming with diversity in terms of color, light, shape, form, speed, and size, we whiz by at high speeds down uniform-looking freeways and spend our days under artificial light in white-walled offices that are generally devoid of variations in sound and highly routine.

All of this fits in well with TV, which is also a sensory-deprivation experience. TV must be viewed in a dark or darkened room, otherwise it can't be seen. It is only concerned with the auditory and the visual, but both of these are distorted from everyday life. For example, on TV we can hear the whispered conversation of a couple standing on a distant hill. Time and space are also distorted, as the events we're seeing are not occurring now or here, but somewhere else at some other time. 

The book deals with so many facets of the TV experience. It's impossible to do justice to this book. Mander explains why hyperactivity is promoted by TV-watching. Children--and adults--see exciting, threatening, scary things on TV and their bodies are compelled to act, but no action is possible. (We can't hit the bad guy or run away from the rapist or put a stake through the vampire's heart.) The watcher is forever in a state of wanting to act but being unable to do anything. This frustrated action is at the ground of hyperactivity.

Mander spends a great deal of time discussing the plight of indigenous people as portrayed on TV. Whereas the people themselves want to convey a feeling for their land and their way of life and their spiritual awareness of their environment, that is not possible to convey on TV. That takes time, a lot of time, and it takes direct experience. Land-use issues are reduced to legal battles and justice and discrimination, when in fact, the indigenous people see it in much more intimate, creative, encompassing, interconnected terms.

The same is true of environmental/nature programs. Mander finally came to see, with his nonprofit ad clients, that they should avoid TV. The more they attempted to show the beauty and the wonder of the places they were attempting to save from destruction, the more the public felt these lands were expendable. Unless you have walked in a redwood forest and felt the stillness and the wonder down to your very bones, you do not understand what a redwood forest is. If you have just seen redwoods on a tiny TV screen,  without the smells, sounds, and sensuality of a forest, you are most likely to concur with Ronald Reagan, who said, "If you've seen one redwood, you've seen them all." Given a TV experience of redwoods, it's much easier to side with economic development and jobs.

What Mander discovered is that death is more effective on TV than life. So instead of showing footage of gorgeous redwoods, he began producing commercials of stump forests. I remember these commercials so clearly. They were shocking. And I vividly recall when I was camping at Kings Canyon National Park and took a bunch of dirt roads to see where I'd end up. I ended up in a stump forest. It was horrifying to be driving through such beauty and splendor and then to turn a corner and see the slaughter of hundreds upon hundreds of redwoods. It was as if nature itself had been killed.

Mander discusses the mediated environment--how people rely on TV for their experiences, their feeling fixes, their guidelines on how to act with other people. And then how eventually we turn into the people on TV.

The bottom line is YOU MUST READ THIS BOOK. If you are a teacher, I implore you to incorporate it into your class. You could easily spend an entire semester discussing it. It would be perfect for a college class in journalism, communication, psychology, pop culture, American studies, political science, philosophy, and of course, advertising.

This book is just too good not to read it. You will continually sigh "Oh, wow" and pull your friend or family member aside and read something aloud to him or her.

Thursday, November 11, 2010

Surprised I'm Alive

Yesterday I saw an orthopedic surgeon for a follow-up appointment for the hip socket I broke in March. Every step I take I can feel something poking me. This is especially acute when ascending stairs. Dr. Velasquez said swimming would be the best thing for my leg, but I can't swim with peritoneal dialysis. Too great of a possibility of infection. So he recommended physical therapy, which I'll begin again in a few weeks.

As Dr. Velasquez was looking at my records, he commented that I've been through a lot. Yessir. Type 1 diabetes, hypertension, surgery for a detached retina, cataract surgery, surgery to correct a hemorrhage in my eye, a dozen bouts of laser surgery to stop eye hemorrhaging, stent surgery, triple-bypass surgery, dialysis, broken hip socket. And all the accompanying paramedic visits and hospitalizations. He called me "a brave lady," then said it's a wonder I'm still here.

It's a wonder to me too. I am so weak and worn-out most days that I just don't know as if I can take the next step. Doing the laundry, as I did today, is such a chore. Carrying the full laundry basket, bending over to sort or pick up clothes, and reaching to hang clothes are arduous tasks for me. Yesterday I gave two massages, and that was about at the upper limit of the my physical cababilities. Working in the community garden really wipes me out. Often walking to the end of the block and back is more than I can do. Every morning when I awake, I am a bit gigglish that I've kept death at bay for another day. The bottom line is that I could really use a kidney.

I read in the local paper about a nonprofit called Cleaning for a Reason. At first I thought they might be able to help me do the housework I need to do. Then I saw that they work only with breast cancer patients. I'll just have to plug on, as I did following bypass surgery, doing more than I feel comfortable doing because it's got to get done.

I realize that my recovery from heart surgery was protracted because I was doing more than I should have done. Had I rested and slept, I probably would have been back to normal within a week or two, but as it was, it took upwards of two months.

My hope is that, should I receive a kidney in the next few weeks, my friends will help out afterwards. They might have trouble believing that someone who is only 52 and looks as good as I do struggles with simple tasks. They may think that when I've asked for help, I'm really not serious. Whatever have been the reasons in the past, I am envisioning assistance and support following surgery so that I can enjoy a speedy recovery. Well, and of course to enjoy the presence of friends, not their email presences but their flesh-and-blood presences.

But to have a recovery, first I need surgery. ASAP.

Tuesday, November 09, 2010

Cindy and I Meet

Cindy, my potential donor, was in town this weekend for a cousin's baby shower, so we met for breakfast. This was our first face-to-face meeting. So good to spend two hours or so talking about things other than kidneys.

We still don't know if she is a match, but we should know soon.

Friday, November 05, 2010

Friends Who Don't Return Calls

What is it that causes friends to just stop returning calls and emails? During this past year alone, I have seen this happen with two people who I have long considered among my top five friends. Let's call one Tina and the other John.

I've known Tina for about seven years and John for almost 21. Whenever we've gotten together, we always have a really good time. At least it sure seems like that from my perspective. As with most friends throughout my life, it is up to me to call first and suggest a venue or event, though Tina would often secure free tickets and invite me.

I have not seen Tina since late January, and the last I saw of John was shortly after that. I have called and left messages several times for each of them. I have sent group emails and personal emails about a dozen times to both. No response, save for John telling me that he had a cold and so couldn't call me. That reminds me of the "I have to wash my hair" excuse for not accepting a date.

What is it about our world that we can just drop people like that? Without parting words. Without reason. At least no reasons that are stated. What is wrong with us as a society that we can just cut connections with a friend of even two decades' standing as easily as we can neglect to answer an email from a potential suitor on an online dating site?

Though I have received many, many such messages over the years that Southern California is not a good fit for me, perhaps this is just one more. Granted, our entire country and our entire world are fast becoming as disconnected and superficial as So Cal, but So Cal has always been the epicenter.

Thursday, November 04, 2010

Hiding my "Yuk"

Yesterday I had one of those insensitive-healthy-people experiences while receiving a service from a 250- to 300-pound woman, let's call her Debbie. She's a sweet gal, but she doesn't know anything about dialysis, as is the case with most people. She didn't know the difference between hemodialysis and peritoneal dialysis, the latter of which I do. When I said that PD necessitates a tube issuing from my abdomen, Debbie made a face and groaned an exaggerated "YUK."

I should have said something then and there, but I didn't. It was a teaching moment. Already several men have rejected me because of dialysis. One of my very best friends said that she wouldn't want to be intimate with someone on dialysis.Another friend's boyfriend said that dialysis made me a "freak." And here is Debbie, reinforcing this rejection.

Granted, she probably thought nothing of her comment, just as people who are in long-term relationships think nothing of giggling and making light of others being without a partner, without even a date.

I wonder what the psychological mechanism of this is. Is that people think that by laughing at another's pain they distance themselves from it? That in this way they perform a ritual to keep sickness and loneliness from ever touching them? I can't answer this because it's not been my response. My heart has always gone out to people who have been dealt a difficult hand, though I have very little sympathy for people who bring difficulties on themselves. But I certainly don't laugh at them!

Interesting, too, that Debbie is showing her "yuk" to the world all the time in the form of her excess weight, whereas I at least am hiding my "yuk" under my clothes.

Saturday, October 30, 2010

The Cold That Won't Quit

Ever since returning from France in June, I have had a cold. The symptoms change--sometimes phlegm that can be expelled, mostly phlegm that's stuck in my throat and chest, sometimes a ticklish nose and a lot of sneezing, sometimes a bunch of coughing. But it never goes away.

I saw Dr. Mai, my acupuncturist, yesterday, and he said I have to take care of this or it will turn into chronic bronchitis or asthma. Well, I'm certainly ready to be rid of it.

I have been tired and weak for the last month or so. Perhaps the cold is really dragging me down.

Thursday, October 28, 2010

Kuehl Family Reunion, 1987

Not this coming weekend but the next is the Kuehl family reunion. For many years now, it has been held on the first Saturday of November. Whereas during my childhood and my son's early childhood, the reunion was a picnic held in a Trimont, Minn., park, these days it's a foeden-making party. Foeden are donut-like treats made in a special skillet.

The following is an essay I wrote in 1987 and hoped to publish. It has waited in my document files until now to see the light of day. I am in the process of sorting through all my writing and separating the wheat from the chaff. This piece is part travel story of the small towns of southern Wisconsin and Minnesota, and part philosophical musings on the nature of family, connection to the land, and traditions.

Taking the Long Way Home




Over the Back Roads of Wisconsin and Minnesota


As a young child, the drive to Ormsby, Minnesota, had seemed endless to me, and so I could hardly blame my 14-month-old son for squirming in his car seat and occasionally wiggling his way out when we made the trip with my mother this past summer. At the end of our journey, relatives waited for us and for the Kuehl family reunion, an annual tradition that my mother had tried to make every year when my brother and I were children. Now that she has a grandchild, she feels the pull of time all the more strongly, and so seeing her "people," as she calls her sisters, is becoming more and more important.

I sat in the back seat with Aaron while my mother drove. Mine was the more rigorous detail. Keeping Aaron entertained for two days--five hundred miles--of driving was no easy task, but I quieted his cries and forestalled his screams with my shopping bag full of tricks: picture books of doggies and duckies, a yellow play phone for calling Daddy, a hedgehog hand puppet in a red bandana, Aaron's favorite teddy and, when all else failed, Goldfish crackers I fed him slowly, never more than one per mile.

It was a cool and drizzly June morning when three generations of Kuehl started out for the homestead in southwestern Minnesota, driving west from Racine via Highway 20. At Rochester, what must be one of southeastern Wisconsin's most picturesque towns, we turned north onto 83, on which we passed fences and barns of Kettle Moraine field stone, rain-sprinkled pastures and cows lazily grazing under overcast skies.

We stopped for mid-morning coffee and the best homemade poppyseed cake I'd ever tasted at the family-run Genessee Depot in the town by the same name. Dressed in blue-and-white-striped apron and hat, "Grandma" brought us mugs of hot coffee while her seven-year-old grandson took our order and my mother talked with the boy's father about Alfred Lunt and Lynn Fontanne, the Broadway stars who adored the Wisconsin countryside and built their estate outside of town.

At Wales we again turned west, this time on 18, which took us all the way to Madison. Before we reached the capital and what was to be the most congested leg of our journey, we stopped in Dousman, just long enough for me to photograph an unusual building at the side of the road--a barn or a storage shed, I wasn't sure which--painted a soft peach with white filigree woodwork along the eaves that made me think of a cake with elaborate icing.

When I had made this trip with my parents and brother, we had always taken 12 out of Madison, and farther on, 16, highways which have now been all but rendered obsolete for interstate travelers by I-90, which closely parallels them for many of their miles. This summer, however, we opted for a different path--14 and its meanderings through Black Earth, Mazomanie, and after it crosses the Wisconsin River, Spring Green, where we stopped at a roadside park for a picnic lunch. Huddling beneath an open shelter, my mother and I ate the Cornish hens I'd prepared the night before while Aaron played with the hand-pumped drinking fountain.

The skies began to clear in the afternoon as we headed north on 14 through Gotham, Richland Center and Readstown, and by the time we reached Viroqua, we had rolled down our windows for a chance at a cool breeze. Instead of continuing on 14 to La Crosse, I convinced my mother to head west out of Viroqua on 56. She said she had never taken this stretch of road before, and the mere three cars we saw along the 20 miles to the Mississippi River town of Genoa were evidence that not many others had either.

In sleepy Genoa we turned north on 35, a lovely road that made me wish we had more time to take 35 south along the river banks to Praire du Chien and then back north again to La Crosse, our motel stop for the night.

After a McDonald's breakfast the next morning, we crossed the Mississippi. I attempted to focus Aaron's attention on the river, so he could share in my excitement, but all he was interested in were the trucks on the bridge and the teddy in his arms. It was a perfect day for traveling--sunny but not hot, blue sky with plump clouds, not too muggy.

Our first hours were spent in the hill country of southeastern Minnesota, much of which is state park and forest lands. The few small towns along 16 are snuggled beside the Root River, which does much to give Hokah, Rushford and Lanesboro a sense of timeless peace. We detoured at Peterson and Whalen, the two smallest burgs. Located over an old bridge that crosses the Root, Peterson's only inhabitant appeared to be a lone dog. The shops were all closed, and looked as if they had been for some time. The houses didn't appear abandoned, yet there was no one around. We drove to the highest point in town, a steepled church. It was for sale.

Whalen appeared more optimistic, though not much livelier. A gift shop had tried to survive on Main Street, and failed. A grocery store was in the process of shutting down. But the town had a park with two picnic tables and a gazebo, and the historical society maintained a museum, which was closed when we were there. I left the hill country thinking how sad it is that the most beautiful places are usually the ones where it's so difficult to make a living.

At Preston the terrain abruptly turned flat; the vegetation changed from forests to farmers' fields. At Grand Meadow we attempted to piece together a path over county roads, but kept getting turned around, passing through Rose Creek three times before giving up and, reluctantly, joining with I-90. The long, monotonous miles of cornfields prompted my comment: "I bet a lot of farm kids look at this freeway and think, 'That road's my ticket out of here.'"

Just west of Welcome, we left the interstate and drove eight miles north on Minnesota 4 to the first settlement of Trimont. Over the years, my aunts and uncles had left Ormsby, where my Grandma Kuehl had lived until her death in 1965: Gilma, Dorothy and Viola now resided in Trimont; Bernita, in St. James.

We had supper that evening at Aunt Gilma's: pork chops, green-beans-and-Velveta casserole, jello salad with a dollop of Miracle Whip. After the dishes were done, I put Aaron in his stroller and walked along the deserted main street, past the cafe where retired farmers, like my uncle Bill, went to shoot the breeze about the price of corn.

I pushed the stroller to the very edge of town. Strange, but this town really did have an edge. Next to the implement shop, just beyond the railroad tracks, Trimont ended and fields of soybeans, lavender and pinkish in the last rays of sunlight, began.

I thought of all the cities and towns I have known in which the residents were strangers, and of my son who has logged more jet time than most of his Minnesota uncles and aunts have accrued in their lifetimes. Aaron has flown from Los Angeles to Milwaukee for two Christmases, two weddings and one family reunion. He's traveled the West Coast in his parents’ van, his first camping trip when he was not yet three months old.

The long-awaited family reunion took place on Saturday afternoon at the shelter in one of Trimont's two parks. Aaron wasn't yet walking, but I set him down as soon as we got there and didn't pick him up again until we left six hours later. He had plenty of great aunts who were more than willing to fuss over him, and he was pleased to explore on his own, getting dirtier than my cousin Nick's 1000-pound sows.

I hadn't been to a family reunion in nine years, when my husband and I had driven out from Chicago, where we lived before moving to California. Cousins I had remembered as delightful preschoolers were now in junior high, and those who had been fixed in my memory as insecure teenagers had become lawyers, small business-owners, middle managers and teachers in my absence. My cousin Heidi is a now wildlife biologist for the Minneapolis Zoo.


As I now put maps of Wisconsin and Minnesota in Aaron's baby book and mark our route in yellow felt pen, I think of my aunts and uncles in rural Minnesota, who, almost without exception, have never traveled abroad, indeed many rarely leave their immediate area. A shopping excursion to Minneapolis, a little over two hours away by freeway, is a major trip. I thought of L.A., where I now live, and how one city rubs right up against the next with only a sign to let you know you've left one for another.

Even the surrounding areas are not familiar. I had asked my Aunt Dorothy what she knew of Swastika Beach, a town less than 20 miles from her home in Trimont. "How did it get that name?" I wondered. She'd said she'd never heard of the place, yet, in over 70 years, she's never lived more than 50 miles away. "There are so many little settlements no one ever hears about," she had answered. "You only know the towns where someone you know lives."

I think of the traveling my son will do in his lifetime, the people he'll meet and befriend in far-off places and the towns he'll know even though he knows no one in them. I have only two wishes for my young traveler: that he'll also want to "know his roots," as his grandmother would say--the Kuehls who will wait for him every summer at family-reunion time in places like Ormsby, Trimont, St. James and Alpha; and that maybe someday he and I will both discover what goes on in Swastika Beach. Until then, youngest cousin Vonn and best-looking cousins Nick and Neal will continue to farm the rich black earth that provided a livelihood for my grandparents, Reinhold and Augusta, and so assured that their children would grow to adulthood and have children of their own, who would gather together for family reunions like this one

Slipping

About two months ago, I was at my peak. I was working at a good pace at cardiac rehab without any symptoms. I had no chest pain or constriction, no shortness of breath. If only I could have had transplant surgery at that time.

Since then, things have declined. This is the first I've admitted this to anyone, out of concern that, should I say anything, I will be taken off the transplant list. My performance at cardiac rehab has gone down. I have had to scale back on both the incline and the speed on the treadmill. At night I have to sleep almost sitting up because of the chest constriction I feel if I am lying prone.

I am hoping for a miracle or a quick transplant. I have to put my energy into mind over matter, telling myself even when I am symptomatic, "It is easy for me to climb these stairs. It is easy for me to walk this distance. It is comfortable for me to lie in bed."

Wednesday, October 27, 2010

My First Sweater

Since February of this year, I have been attending a knitting group. I was invited by my massage client Carol (shown here on right; Mary on left), who has been attending for years. I have long wanted to advance beyond scarves and slippers, and so I took on the task of knitting my first sweater.

Although I have missed many of the Tuesday sessions due to hospitalization, travel, or other commitments, I have become a regular. Definitely I am the youngest in the group. Some women have me beat by more than 30 years. For the most part, we avoid discussion of sex, politics, and religion, so all goes smoothly.

The meetings are hosted at Fern's house in east Long Beach. Fern has spent hours helping me, showing me new ways of casting on and giving me all sorts of tips. Here she is shown with me in the sweater I finally finished--whew! It turned out way too big, but Fern says that if I bring it next time, she'll block it for me, a way of ironing a finished product to make it lay nicer. We'll see.

Despite the imperfections that can be seen in the sweater upon examination, I'm proud of my handiwork. I've learned a lot during these past nine months of working on it. My next challenge: socks.

Though the size and composition of the knitting group change every week, here are a few more of the regulars:
* Marcia (with book)
* Annie to her left, our right, who happens to be my next-door neighbor
* Sharon in the white blouse
*Mel on the right


Mel left for Barcelona today. She and her boyfriend are taking a Mediterranean cruise. Carol told me that years ago, she and her beau would split the travel costs until Mel told him that she could no longer afford to pay her half. The boyfriend said that was OK, he'd pay for everything. At least once a month, the two of them take a major trip. Wow, how do I get that kind of gig? Seems as distant as my shot at landing the presidential nomination for the 2012 election!

Sunday, October 24, 2010

The Nourishment of Acquaintances

Friday was my last day of cardiac rehab. I've been attending a one-hour workout three times a week since February. I had to take a few months off when I broke my hip, but then I got back to it again. I want to stay in the best possible shape for my eventual transplant surgery--and to keep my heart in good enough condition to stay on the wait list for a kidney.
For the most part, the other rehab patients have been of the World War II generation, though occasionally there has been a person my age or even younger. I especially bonded with Mary Jo, 83, a woman I wished were my mom. She was fun, funny, thoughtful, and "with it." She revealed things about herself as we were walking side by side on our respective treadmills, but she also asked questions about me. She's pictured here, the one with glasses. Lois, the other gal, was also part of the 10 a.m. group.

Lois said to me on Friday that she was a bit sad, leaving cardiac rehab. She had really enjoyed her time with everyone here. I said I have enjoyed it too, that I receive so much nourishment from my interactions with acquaintances and strangers, that on a daily basis, I receive so much more juice from them than from friends, whom I rarely see. She said this is her experience too.

Friends are wonderful, don't get me wrong. But they have always been rare treats in my life, not the meat and potatoes of my existence. For the most part, they just haven't been around. They're busy with work, relationships, family, school, housework, errands, travel, creative projects, dating, other friends and other social obligations. Or they live hundreds or thousands of miles away. Getting together is a real chore. Sometimes I email or phone a dozen times before I get a response, and then it is often that she or he can't see me. Of my So Cal friends, I have seen Susie and Daphne twice this year, Jose just once, and Othman perhaps a half dozen times. I haven't seen Diana since February. Bev and the other Diana maybe twice this year. I see Tom a few times a month, usually to exchange books. Chris and I have long phone conversations, but we only see each other in person every few months, despite the fact that he lives less than a mile away. When I go beyond a year without seeing a So Cal friend, I hold nothing against him, but I realize that he's moved on.

I always have a good time when I see my friends. Just last Sunday, for example, I had two passes for brunch at the Trump National Golf Club in Rancho Palos Verdes. It was a perk for writing an article for Long Beach Magazine that, in part, discussed the club. Susie and I had a great time, chatting over caviar, sushi, oysters, and all the other components of the nicest brunch I have ever attended--with the best view. But Susie is a busy gal, scrambling as she is to make a living. I realize that visits with her, though wonderful, are going to be infrequent. She, like my other friends, are creme brulee--fantastic, but not something I'm going to enjoy every night.

Acquaintances, neighbors, and strangers are much different. I'm not interrupting their lives to meet up with them. They are simply going about their lives and happen to bump into me going about mine. There is no planning or scheduling involved. They're not going out of their way to see me, and I'm not making an effort to see them. They are simply there, as I am, doing their shopping, walking their dogs, taking out the garbage, watering their lawns, going to cardiac rehab. We may exchange a smile and a few kind words, then we're on our way. 

Every night before dropping off to sleep, I give gratitude for the things and persons of my day. Of course, Aaron and Rasputin always top the list. And then there are Janet and Dana, the best neighbors ever. So often, though, I say thank you for pleasant interactions with strangers, other neighbors, and acquaintances. Too often people think of these interactions as nothing special, that the stuff of relationships is found with lovers, family, and friends. I strongly disagree. A great deal of nourishment comes from those I hardly know or don't know at all. 

Thursday, October 21, 2010

Hooking Up

Every night I hook up for 10 ½ hours,

not with a supernaturally virile man

but a dialysis machine.

All night long it grunts, groans, and moans,

pushing clean fluids into me,

sucking dirty ones out.



Like an ideal man in some fantasy relationship,

my dialysis machine sustains me,

cleanses me, gives me another day of life.

Of course, it’s a life without hope

of romance, relationship, passion, or sex,

since every guy I’ve told so far

has immediately shunned me,

without even a good-bye call or first kiss.



All day long, I carry reminders of these hook-ups:

a foot of tubing that issues from the hole in my belly

and a penis-like transfer set by which I attach to the machine’s tubes.

Each morning after I shower and change the dressing,

I place the transfer set in a baby sock,

wrap the sock with a ponytail tie,

then slip all this inside my panties,

hiding the evidence under my clothes.

All day long, this artificial penis

rubs against my crotch,

the closest I ever get now

to what everyone else calls a hook-up.

Waiting for Test Results

I spoke with Cindy yesterday. She sent the blood test to UCLA. Now we just have to wait two to three weeks for the results. If she is a match, she'll then fly to UCLA for tests to see if she is sufficiently healthy to donate.It's always a waiting game with the transplant process.

Tuesday, October 19, 2010

Cindy's Veins

Last Monday, Cindy went for the blood test to see if she and I are compatible. Her vein collapsed, so she had to let it heal for a week. Yesterday she was supposed to have repeated the test.

After the blood is sent to UCLA, it will take two to three weeks before we hear whether we're a match. So by Thanksgiving we should know. A "yes" answer would cetainly be something to be thankful for.

Thursday, October 07, 2010

I Went Camping Anyway

About 12 hours after I wrote the post "Best Not to Travel Alone" (Sept. 13), I did. Yes, that was the day after I had had a paramedic visit.

I needed to see a client near Sacramento, and a last-minute flight on Jet Blue was something like $300, so I opted to drive. I headed up the coast with Rasputin. We overnighted at the campground at Pfeiffer Big Sur State Park.

Because I had no electricity, I had to perform four manual exchanges of dialysis solution every day. This was quite a chore. At approximately an hour apiece, this consumed a good chunk of my time. I sat inside the truck and placed the empty dialysis bag on the floor, then let the solution that had been inside my tummy drain out into the bag. I attached the dialysis solution bag to the clip on the sun visor so that the solution could drain into me. I maintained the hygience standards that I do at home, cleaning beforehand with Lysol, scrubbing my hands with bacterial soap and antiseptic lotion, and wearing a surgical mask. What's remarkable to me is that I was always able to have some privacy.


The second day I gave a call to Sharon, the first friend I made when moving to So Cal in 1981. Decades ago Sharon moved to Northern California, and when I was making the 600-and-some-mile commute from Huntington Harbor to Point Arena (1996-2000), I would often spend the night at Sharon's in Mountain View. She has since married, moved to Santa Cruz, and had a baby, who is now 7 years old. I haven't seen Sharon for about a decade, but I gave her a call anyway, on the off chance that she might be free for coffee.





Instead, Sharon invited me for dinner and to spend the night. Pictured above is Rasputin next to Sharon's dog, Pasty Noodle the Golden Doodle. Guess who named him! You got it--Sharon and Peter's wonderful daughter, Chloe.
Really wonderful to see Sharon again. We were so comfortable, as if we had been in touch throughout this decade. I don't think there are very many people with whom I could just pick up again like that. Sharon, Peter, and Chloe will be visiting family for a week in So Cal around Thanksgiving. Sure hope to see them then.

Monday, October 04, 2010

Sure Would be Nice

Just returned from the grocery store, where I stood behind a man who complimented me on a purple and lavendar scarf a massage client had knit for me. He was in his late 40s, decent-looking, and seemed to be a tradesman of some sort. He said the scarf was "beautiful" and that his wife had some flowers that reminded him of it.

The interchange was so sincere and kind that I couldn't help but think, "Wow, it sure would be nice to have a man like that in my life. A sweetie who would say nice things to me now and again. What must that be like?"

For the most part, I do a damn good job of forgetting that this huge part of my life is missing, but once in a while, like this afternoon in the checkout line, it creeps in and I wonder, "Will I ever know what a good relationship is? Will I ever have that experience of love, tenderness, and companionship in this life?"

Wednesday, September 29, 2010

Food Under Attack

I know it's hard to believe for those of you out there who think that, at worst, the government is inefficient and incompetent, but wake up, folks, there are two bills facing Congress that would make it illegal to have a home garden, belong to an organic food coop, or in any other way subvert the interests of big agra.

Almost two decades ago, my ex-British secret service buddy, Brian Desborough, told me that one of the aims of the corporate-government collusion was to control the food supply because everyone needs to eat. If you can completely control food, you can completely control the populace. Of course, then you can add things to the food to pacify or otherwise manipulate people. Well, that Orwellian age is upon us.

A July police raid in Venice, California--that's right with guns drawn as if it were a drug bust--on an organic, raw food store is a case in point of what is to come if big business and those senators and congressional reps who prostitute themselves to big business have their way. To watch the surveillance camera video of this bust, see the Los Angeles Times.

I got the brilliant idea that one way to fight the corporate takeover of our food supply is to prosecute corporations under the provision of the so-called Patriot Act that, in part, defines a terrorist as someone who "disrupts commerce." This provision has been used against animal rights, environmental, and peace activists, labeling them terrorists for exercising their constitutional right to protest. Why not turn the tables and use the Patriot Act against corporations that are disrupting commerce at raw food stores and organic food coops! And against the evil Monsanto, which has been strong-arming farmers into buying its genetically modified seeds and running them out of business if they attempt to save their seed from year to year.

Wake up, folks. Get informed. Your government has been hijacked by corporate interests. We all need to fight back in whatever way we can, including buying as little as possible from large stores, actually, buying most of what we need from yard sales and thrift stores. And growing our own food--while we still can!

Tuesday, September 28, 2010

UCLA Gave Its Go-Ahead

I heard from Cindy. UCLA has given its go-ahead on the transplant. This is such good news.

Monday, September 27, 2010

111 Outside, 130 in my Bedroom

The heat is ungodly. Only one ceiling fan off the kitchen. The one in the living room has not been working for week, though I've been promised a new one to be installed tomorrow. The temperature inside my apartment is in the 120s, but my bedroom is even higher.

Because of the cleanliness that must be maintained with peritoneal dialysis, I have to keep my windows closed at all times, not use the ceiling fan because it stirs up dust and dirt, and keep the door closed. Oh, my god, does that make for a hot box! Imagine sleeping inside an oven.

When I have asked the PD nurses about this situation, they have just repeated the training manual: Keep the windows and door closed, don't use the ceiling fan or A/C (the latter of which I don't have). They simply cannot think outside the box. I ask them if it would be preferable if I die of heat exhaustion. They just go back to repeating the manual. UGH!

Saturday, September 25, 2010

No News

Yesterday was to have been the day that the UCLA panel was to have made its decision regarding Cindy's eligibility. I expected to receive word from Cindy, but I have not heard anything. This week I sent her two emails and a Facebook message and left two voice messages.

When Janet, my next-door neighbor, was my potential donor ,we talked every day during our walks with our dogs. When either of us received info from UCLA, we would tell each other about it that day. And when Janet and I were working on a paired donation with Bob and Maria, I spoke with or emailed Bob many times a week. I have not received emails from Cindy for a month or so and have only spoken with her twice on the phone, the last time a week ago. Both times I have, she has been very enthusiastic about the transplant; she says, "where there's a will, there's a way"; and she gives me every indication that she is 100% on board. She strikes me as a compassionate, hardworking, thoughtful woman who wants to give through her work and through her everyday living.

I understand that she may not have time for a phone conversation, but a short email that said "UCLA gave a go-ahead" or "I spoke with my brother, and I'm going to wait to give my kidney to him when the time comes" would be fine too. If Cindy has reconsidered, I'd like to know so I can pursue some other avenue, and if she is moving forward with UCLA, I'd sure like to know that too. I'd like to be in the loop.

The UCLA coordinator won't talk with me about what's going on because her ethical and legal directive is to protect the rights of the donor. And the coordinator won't tell Janet anything about Cindy's status because that is a privacy issue. The system is designed to protect the donor, as it should be. Any information I get has to come from Cindy.

I'm sure she's busy as she works full-time, is studying to be an RN, and is in a relationship, any one of which is time-consuming. I'll wait a day or so and then try to contact her again. And in the meantime, I just have to let the whole thing slip out of my mind. What is going to happen is going to happen, with or without me thinking about it.

Monday, September 20, 2010

Hopes and Hurdles in the Transplant Process

I spoke with Cindy, the young woman in Phoenix who is interested in donating a kidney. She sent her initial paperwork to UCLA and received a call from Jen, one of the transplant coordinators, the next day, so things are moving in the right direction.

Jen is concerned that Cindy is only 26, and the minimum age for living donors, at least at UCLA, is 25. Since Cindy is so young, she has not established medical history as has someone who is older than her, i.e., very little has gone awry in her physical makeup. Therefore, UCLA has to look at her family's medical history rather than concentrating on her own. Since her mother and brother both have hypertension, she is more likely to develop hypertension in the future than someone her age with no family history of hypertension.

Because of her age, her friend-of-a-friend connection with me, and her family history of hypertension, her case must go before a panel that meets tomorrow. Cindy told me that they should have a decision before the week's end and that Jen has promised her a call by this Friday.

Jen also suggested that Cindy talk with her brother, who received a kidney from their sister 15 years ago. Fifteen years is the average life span of a living-donor kidney, and though the brother is doing well now, he may need another kidney in the future. Jen wondered if Cindy would rather wait in the wings for her brother's need to manifest than give her kidney to a stranger. For some reason, I hadn't thought of this before Cindy mentioned it, but I can certainly understand how that would be a big concern for her.

So as of this writing, I am thankful that things are progressing in the right direction, but as is my m.o. with everything that is possible in this life, it is best not to be attached to a particular outcome. I sure hope Cindy is able and willing to donate to me, but if the panel rules against her or if her brother wants her to save her kidney for him, I will avoid debilitating disappointment and discouragement by not being too wedded to these outcomes. In fact, I spend very little thought time with possible outcomes. I am clear about what I want, but then I let go of the thought and let the universe work its magic.

As I told Cindy during our last phone conversation, I am so thankful for her stepping forward. Just the fact that she has done that, that she sincerly wants to donate to me, is a great gift. To think that a stranger would want to save my life--that is truly remarkable. If that does not happen for one reason or another, that in itself is still such a wonderful thing, that a stranger would feel compassion for me and want to help. Wow!

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About Me

Southern California, United States
Perhaps my friend Mark summed me up best when he called me "a mystical grammarian." I am quite a mix--otherworldly, ethereal and in touch with "the beyond," yet prone to being very precise and logical, when need be. Romantic in the big-canvas meaning of the word, I see the world as an adventure, as a love poem, as a realm of beauty and wonder.

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