This past weekend was the 12th annual chick cabin getaway weekend. I arrived at about 11 a.m. on Saturday and was immediately in trouble.
Green Valley Lake, located in the San Bernardino Mountains west of LA, is at 7,200 feet. No one had cautioned me about high elevations, and it didn't cross my mind that attending chick cabin only six months after triple-bypass surgery might pose a problem. Well, it did. Immediately upon my arrival, I was struck by severe chest pain and constriction. I laid down, but that didn't help because lying prone put even more strain on my heart.
When Susie arrived about 20 minutes later, I told her I'd have to drive down the mountain. She didn't think I should do that on my own and took me to the GVL fire station, where I received oxygen.
I knew my blood sugar was high and suspected that my insulin pump's infusion site was not delivering insulin to my body, but I was in no shape to change my site. Unfortunately, I did not receive an insulin injection until five or more hours later in the ER at St. Bernadine's in San Bernardino. By that time, my blood sugar was over 500.
The GVL station was not equipped to handle me, so an ambulance took me down the mountain. Some of the chick cabin gals followed in my my truck and in Susie's vehicle. Laurianna, a firefighter in New Mexico, helped by getting a list of my meds. The paramedics were such nice guys. Aren't they always! Scott tried to get an IV in my left arm while we were twisting down a winding mountain road and failed. He then asked me if I'd ever had an IV in my neck, and I told him that for sure we're pulling over if he's thinking of doing that!
Next came three sublingual doses of nitrogylcerin and an infusion of morphine. That got the chest pain under control for a while. By the time we got to the ER, I was feeling much better, so my friends left without me asking them to get my blood monitor and insulin supplies from my truck. I could have kicked myself for that, since my blood sugar was not regulated until noon the next day. If I had been able to get my insulin pump working, I would have been in much better shape much sooner and would have prevented much of the chest pain.
I was transferred to Kaiser Fontana on Saturday evening and stayed there until Monday evening, when Aaron and Rasputin picked me up. (Heather had driven my truck back to Long Beach as I hadn't known if I would be transferred to Downey, and I didn't want to have to worry about the truck.)
Heather called and left a message on Saturday night. Unfortunately, I was talking with a doctor and didn't take the call. Heather said that the only phone that worked at the cabin was Susie's, so I called Susie back. Unfortunately, I called her home number, not her cell. I must have left a dozen messges on Susie's home phone--all messages that she didn't retrieve until she got back to LA! I also left a bunch of messages on Heather's cell, just in case she got to a place in the mountains where she could retrieve them. I was alone and lonely, and I really wanted the support of the chick cabin girls.
Early Sunday afternoon, a doctor told me that my triponin level had continued to increase and was now in the borderline region between questionable and probable heart attack. This set me over the edge. I simply could not face the possibility of being on dialysis for the rest of my life because of a cardiac event.
The docs wanted to either perform a nuclear-medicine stress test or an angiogram to see if there had been any new damage to the heart. I was against the former as it would require a blood transfusion, which means the possibility of antibody formation, which would complicate or preclude a kidney transplant. I was anemic, with my hemoglobin at 9.6. In order to safely perform the stress test, I'd have to be at least a 10.
The angiogram is far more invasive and carries the risks of heart attack, stroke, or death. Besides, the dye can damage the kidneys.
After much hand-wringing, crying, and consulting with doctors, I opted to leave the hospital, up my procrit injections to stimulate blood-cell formation, test my hemoglobin in a week or so to see if it is 10or more, and if so, take the stress test. Getting all this done before leaving for France on June 1 is another matter.
My belief--and I'm holding to this--is that this was a perfect storm of high altitude, high blood sugar, and anemia, any of which taken alone can cause chest pain and constriction. I am holding to the belief that this was not a heart attack or anything else that might jeopardize my placement on the list. I will get on the list, stay on the list, and receive a successful kidney transplant.
Mystical experiences, yearnings, politics, little dramas, poetry, kidney dialysis, insulin-dependent diabetes, and opportunities for gratitude.
Tuesday, May 18, 2010
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- Heidi's heart
- Southern California, United States
- Perhaps my friend Mark summed me up best when he called me "a mystical grammarian." I am quite a mix--otherworldly, ethereal and in touch with "the beyond," yet prone to being very precise and logical, when need be. Romantic in the big-canvas meaning of the word, I see the world as an adventure, as a love poem, as a realm of beauty and wonder.
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