From an ancient Chinese medicine text, "The Yellow Emperor's Canon on Internal Medicine," comes these sage words: "Keep your mind guarded like a city in battle." I fell in love with these words the first time I encountered them.
Since that encounter, I see myself as a guard stationed above the door to the castle. A stranger comes to the door and wants to be let in. I tell him that he can speak his mind, and I will then decide whether to grant him entrance. The stranger, of course, are ideas, beliefs, advice, theories, and opinions. The guard listens to all of them, just like I am free to listen to anything anyone says. I then must do the most important job: decide whether such an idea should take up residence in the castle or if it should be sent on its merry way.
As so often happens in life, there are two messengers at my gate with divergent messages. The one who has been there for decades are all the folks over the years who have been telling me that I am too independent and that men want to feel needed by a woman. My friend Beverly, with whom I confided on such matters, says that any man who sees me in one of my full-body orgasms will run for the hills, thinking that if I can get set off by a good kiss or even the touch of a hand, what need do I have for him! But whether it's low sexual threshold or traveling by myself or not falling all over every man who comes along, it's my independence that is keeping men away. That's been the prevailing sentiment. But yesterday Susie told me that I am needy and that this is keeping men away.
I have looked deeply at both these messages, and I have decided not to let either one of them enter my castle. I am proud of my resourcefulness and independence. I get a great sense of satisfaction when I can figure out how to fix something on my own. Of course, I would love to have a man in my life who would say, "Oh, honey, let me do that for you." Wow, that would be fantastic. But he's not here, and I'm not going to start compromising who I am at this late stage. As Tracy Chapman sang, "All I've got is my soul." Amen to that! True, the vast majority of men may be insecure, as Beverly is always telling me. The vast majority might give me a kiss and send me into a bout of quivering and writhing, and that might scare them. But I'm not interested in that kind of man. I'm interested in the kind of man who would see that and say, "Damn, honey, that's what you do with a kiss! I can't wait to see what happens when we take our clothes off!"
Sunday, August 09, 2009
Is Sad the Same as Needy?
I was in the hospital Saturday and Sunday with another attack of sudden-onset vertigo. While there, I spoke with my friend Susie, the amazing gal who has just donated one of her kidneys to her friend's husband. Susie is a dynamic, playful, intelligent, big-busted, big-hearted woman. Truly remarkable. So when Susie says something, I take heed.
Susie says my posts express a neediness for a man, and that my neediness is keeping men away, that the sadness expressed in my posts are really the writings of a needy woman. As "needy" is not a word I would ever use to describe myself, I thought I had best take a good look at what Susie said.
True, I have been down at times. This last week or so has been very difficult, with bouts of weepiness for seemingly no reason, but I finally associated this with the antibiotic I was taking for the infection of my dialysis tube. I finished the regimen yesterday, and my mood has definitely improved. Other than such pharmaceutically induced blues, I really have been feeling remarkably well since March. (The first month of dialysis and the build-up to dialysis were very difficult, but then I would think they would be difficult for anyone. Surely, no one wants to be doing dialysis.)
I went back and reread the posts in which I share the strategies I have used over the years to boost or maintain my mood--saying aloud "I am loved, I am deeply loved," hugging myself, and going on "fun walks" in which I am very attentive to the beauty around me. In each of these posts I admitted that initially these practices did not bring me joy, that at first they highlighted my aloneness. But in every case, I ended with the deep and profound recognition that something much greater than the little self--call it God if you will--is sending me love. If someone only reads the first half of these posts, yes, I'd agree that they might be downers. But if you read to the end, you see that these are joyful experiences, certainly not desperate or needy.
When I was a child and a young adult and even a not-so-young adult, I was needy. I was in an uninterrupted state of depression and frequent withdrawal from the world. But that Heidi just doesn't exist any more. I had a shift several years ago, a shift that released food as a coping strategy, a particularly life-threatening coping strategy for a diabetic. This shift also included major changes in the way I perceived myself, my mission, and my relationship to other people. Basically, I decided to be happy, no matter what.
Now, of course, things happen in life that challenge that state of being, but these dark times are far less dark than they have been in the past, and they are much more short-lived. Darkness sometimes passes over me like a cold breeze, and I am sad or weepy for a minute or two, and then it is gone.
Susie not only prompted thinking about my own character, but about the wider question: Is sad the same as needy? I sure don't think so. To me, sad is to needy as poor is to moochy (or whatever the adjective is for being a moocher). Sad is personal, something you can keep to yourself, something you can indulge in when you're alone but go out into the world with a smile and a glow about you. One goes home to weep alone, just like one goes home to shit alone, to get out the impurities, so that one can go back into the world refreshed. Needy is 24/7. Sad is personal and can be contained so that it only effects the person who is sad. Others may know the sad person and even be good friends with her and yet always think of her as the happiest, sunniest person going. Needy is a drain on others; needy zaps the people it's around. Similarly, poor is a statement of fact: Someone is poor, he lives in a substandard dwelling, his clothes are worn, and he has few possessions. This is very different from a moocher, who is also poor but who begs, borrows, and cheats his way into getting others to give him a place to live or his next meal or a new set of clothes. He zaps others, whereas the poor man does not. The poor man accepts his state of being and lives as best he can within what has been given to him. So, definitely, all needy people are sad people, but the reverse is not true.
Susie says my posts express a neediness for a man, and that my neediness is keeping men away, that the sadness expressed in my posts are really the writings of a needy woman. As "needy" is not a word I would ever use to describe myself, I thought I had best take a good look at what Susie said.
True, I have been down at times. This last week or so has been very difficult, with bouts of weepiness for seemingly no reason, but I finally associated this with the antibiotic I was taking for the infection of my dialysis tube. I finished the regimen yesterday, and my mood has definitely improved. Other than such pharmaceutically induced blues, I really have been feeling remarkably well since March. (The first month of dialysis and the build-up to dialysis were very difficult, but then I would think they would be difficult for anyone. Surely, no one wants to be doing dialysis.)
I went back and reread the posts in which I share the strategies I have used over the years to boost or maintain my mood--saying aloud "I am loved, I am deeply loved," hugging myself, and going on "fun walks" in which I am very attentive to the beauty around me. In each of these posts I admitted that initially these practices did not bring me joy, that at first they highlighted my aloneness. But in every case, I ended with the deep and profound recognition that something much greater than the little self--call it God if you will--is sending me love. If someone only reads the first half of these posts, yes, I'd agree that they might be downers. But if you read to the end, you see that these are joyful experiences, certainly not desperate or needy.
When I was a child and a young adult and even a not-so-young adult, I was needy. I was in an uninterrupted state of depression and frequent withdrawal from the world. But that Heidi just doesn't exist any more. I had a shift several years ago, a shift that released food as a coping strategy, a particularly life-threatening coping strategy for a diabetic. This shift also included major changes in the way I perceived myself, my mission, and my relationship to other people. Basically, I decided to be happy, no matter what.
Now, of course, things happen in life that challenge that state of being, but these dark times are far less dark than they have been in the past, and they are much more short-lived. Darkness sometimes passes over me like a cold breeze, and I am sad or weepy for a minute or two, and then it is gone.
Susie not only prompted thinking about my own character, but about the wider question: Is sad the same as needy? I sure don't think so. To me, sad is to needy as poor is to moochy (or whatever the adjective is for being a moocher). Sad is personal, something you can keep to yourself, something you can indulge in when you're alone but go out into the world with a smile and a glow about you. One goes home to weep alone, just like one goes home to shit alone, to get out the impurities, so that one can go back into the world refreshed. Needy is 24/7. Sad is personal and can be contained so that it only effects the person who is sad. Others may know the sad person and even be good friends with her and yet always think of her as the happiest, sunniest person going. Needy is a drain on others; needy zaps the people it's around. Similarly, poor is a statement of fact: Someone is poor, he lives in a substandard dwelling, his clothes are worn, and he has few possessions. This is very different from a moocher, who is also poor but who begs, borrows, and cheats his way into getting others to give him a place to live or his next meal or a new set of clothes. He zaps others, whereas the poor man does not. The poor man accepts his state of being and lives as best he can within what has been given to him. So, definitely, all needy people are sad people, but the reverse is not true.
Tuesday, August 04, 2009
Wait List Update
Several developments in the wait list saga:
* Met with my Kaiser cardiologist, Dr. Phan, who said that my UCLA cardiologist, Dr. Van Herle, is leaving UCLA. I have been assigned a new cardiologist, Dr. Michael Lee--yes, another Michael, which I am taking as a good sign. I have called about an appointment with Dr. Lee, but have not yet secured one.
* I am holding off on the angiogram until after I meet with Dr. Lee. To recap, the angiogram uses a dye that is damaging to the kidneys. Furthermore, patients who are asymptomatic (no chest pain) fare worse with stent surgery (the end result of an angiogram) than without. Also, I have no guarantee that I'll be on the wait list if I do the stent surgery, so this is potentially a lose-lose-lose situation for me.
* Dr. Lee told Dr. Phan that he is willing to begin with a MUGA (Multiple Gated Acquistion) test, which will measure my heart's pumping ability or EF. This should clear up two inconsistent sets of data, one from the nuclear scan done about two months ago that indicated my EF was around 30 and the other from an echocardiogram, which showed an EF of 50, which is the low side of normal.
Months ago I had made plans to go to Canada, thinking that for sure the wait list would be decided by August. Alas, such is not the case. Most likely I will have to wait until after my return on Sept. 9 to undergo the MUGA and see Dr. Lee, so I may not have much news for a while.
Please see my left ventricle pumping like crazy, supplying my heart with all the blood and oxygen it needs to do its job perfectly, smoothly, and effortlessly.
* Met with my Kaiser cardiologist, Dr. Phan, who said that my UCLA cardiologist, Dr. Van Herle, is leaving UCLA. I have been assigned a new cardiologist, Dr. Michael Lee--yes, another Michael, which I am taking as a good sign. I have called about an appointment with Dr. Lee, but have not yet secured one.
* I am holding off on the angiogram until after I meet with Dr. Lee. To recap, the angiogram uses a dye that is damaging to the kidneys. Furthermore, patients who are asymptomatic (no chest pain) fare worse with stent surgery (the end result of an angiogram) than without. Also, I have no guarantee that I'll be on the wait list if I do the stent surgery, so this is potentially a lose-lose-lose situation for me.
* Dr. Lee told Dr. Phan that he is willing to begin with a MUGA (Multiple Gated Acquistion) test, which will measure my heart's pumping ability or EF. This should clear up two inconsistent sets of data, one from the nuclear scan done about two months ago that indicated my EF was around 30 and the other from an echocardiogram, which showed an EF of 50, which is the low side of normal.
Months ago I had made plans to go to Canada, thinking that for sure the wait list would be decided by August. Alas, such is not the case. Most likely I will have to wait until after my return on Sept. 9 to undergo the MUGA and see Dr. Lee, so I may not have much news for a while.
Please see my left ventricle pumping like crazy, supplying my heart with all the blood and oxygen it needs to do its job perfectly, smoothly, and effortlessly.
Monday, August 03, 2009
I am Loved, I am Deeply Loved
Every once in a while, I need a boost, even if I have to supply it myself. I have written about the hug-myself and Spassiergang strategies in previous posts, and I'd like to share another means to maintain one's spirits.
Shortly after I began giving massages for a living, I began holding the thought that the person on my table is loved, deeply loved. I did not say this aloud, but I concentrated on these words and sent their power into the person's body and consciousness. As I did this, I visualized and then felt the loving energy of the universe enter my crown and travel to my heart and then down my arms and out my hands. As I held this thought, I, too, felt deeply loved.
This is a very powerful meditation, as it does not name the person, so the "you" who is deeply loved is both the client and me. In fact, the "you" seems to disappear until only love, pure and limitless and unspecified, remains.
Also, the lover is not named, so the love is not contingent upon this or that person's affections. "You are loved, you are deeply loved" is a statement of each and every person's birthright. In this way, it is far more powerful than "John loves Judy" or "John loves Jack." Love is, always and forever, though it's form may change.
Over the years, I have often whispered "I am loved, I am deeply loved" to myself when I was feeling left out of romantic love or when friends were hard to find. Sometimes this helped me feel better, and sometimes I just felt worse, berating myself for having to be the one to say these words to me.
But I kept saying them nonetheless, adopting the fake-it-until-you-make-it strategy. In time, I shifted in this respect as in many others, and the words turned from mockery into an expression of joyfulness. At such times, I enter into the space of the non-specific lover, and I feel love eminating from the moon and the trees and an evening breeze and a ray of sunshine. All are animated, and all seem to be saying, "Heidi, you are loved, you are deeply loved."
Then a few weeks ago, I had a beautiful insight. For decades I have been affirming that with every day that passes, the man who is matched to me is drawing ever closer. I have also asked that he visit me in my dreams and, by so doing, reach out to me in waking life. The insight that came to me when I was actually feeling quite a bit down about spending yet another year boyfriend- and husband-less was that the man who is matched to me--wherever he may be--deeply loves me. Just as I deeply love him and reach out to him through my prayers and affirmations and dreams, and by so doing, deeply love him, so, too, is he reaching out to me and loving me through his prayers, affirmations, and dreams. What a fascinating kind of love that is! Worth a short story, I'd say.
Shortly after I began giving massages for a living, I began holding the thought that the person on my table is loved, deeply loved. I did not say this aloud, but I concentrated on these words and sent their power into the person's body and consciousness. As I did this, I visualized and then felt the loving energy of the universe enter my crown and travel to my heart and then down my arms and out my hands. As I held this thought, I, too, felt deeply loved.
This is a very powerful meditation, as it does not name the person, so the "you" who is deeply loved is both the client and me. In fact, the "you" seems to disappear until only love, pure and limitless and unspecified, remains.
Also, the lover is not named, so the love is not contingent upon this or that person's affections. "You are loved, you are deeply loved" is a statement of each and every person's birthright. In this way, it is far more powerful than "John loves Judy" or "John loves Jack." Love is, always and forever, though it's form may change.
Over the years, I have often whispered "I am loved, I am deeply loved" to myself when I was feeling left out of romantic love or when friends were hard to find. Sometimes this helped me feel better, and sometimes I just felt worse, berating myself for having to be the one to say these words to me.
But I kept saying them nonetheless, adopting the fake-it-until-you-make-it strategy. In time, I shifted in this respect as in many others, and the words turned from mockery into an expression of joyfulness. At such times, I enter into the space of the non-specific lover, and I feel love eminating from the moon and the trees and an evening breeze and a ray of sunshine. All are animated, and all seem to be saying, "Heidi, you are loved, you are deeply loved."
Then a few weeks ago, I had a beautiful insight. For decades I have been affirming that with every day that passes, the man who is matched to me is drawing ever closer. I have also asked that he visit me in my dreams and, by so doing, reach out to me in waking life. The insight that came to me when I was actually feeling quite a bit down about spending yet another year boyfriend- and husband-less was that the man who is matched to me--wherever he may be--deeply loves me. Just as I deeply love him and reach out to him through my prayers and affirmations and dreams, and by so doing, deeply love him, so, too, is he reaching out to me and loving me through his prayers, affirmations, and dreams. What a fascinating kind of love that is! Worth a short story, I'd say.
Friday, July 31, 2009
Feeling a Little Down on my Birthday
Rasputin is chewing on a bone, and I'm putting off some editing that I've been putting off for weeks now. After completing this post, I have to get at it. That's how I'm spending this Friday night, which happens to be my birthday.
I am grateful to those friends who remembered the day, calling me with well wishes, posting Facebook comments, or sending a card. And dear Georgette, the Floridian pixie, Photoshopped me as a flirtatous faerie, which is now dangling from my living-room ceiling fan.
Despite the kindness of these friends, I'm feeling a little down, not much, just a little. I no longer stay down, as I did when I was a child or as I did until about six years ago when a lot of things shifted for me. And my downs are not so deep as they once were. Sometimes I feel down for only a few minutes now. Today it's been a few minutes here and there.
Birthdays, like holidays, help us mark the year. They're a time for us to reflect on what we've experienced during the past 12 months and on those things that seem ever-elusive. New Year's Eve, for example, has often been a down time for me, not just because I don't have a date (the first and last time that happened was 1976 with Rod at the Milwaukee Performing Arts Center), but that I think, "Another year and still no love to share it with."
I wonder when I will be with a love who will remember my birthday, go to sleep beside me, wake up next to me, kiss the back of my neck, and rub whatever he can of my taped-up belly. I wonder when I'll go on B&B weekends with a lover, when I'll be invited to parties at which everyone else is in a couple and I will be too, when I'll have someone to give me a ride home from the mechanic, when I'll find a man who actually wants to have sex and is capable of doing something in bed.
I was referred by the Renal Support Network to an article about a PD patient who was very reluctant to begin dialysis but received a transplant a few years back and is now having a wonderful life with her husband. This article is meant to inspire and encourage, but it has not done that for me. All the craziness I have been going through to get on the damn transplant wait list, and the craziness continues. Where will it end, and will it end with me on the wait list or simply having gone through all this drama just to be denied? And the loving, supportive husband--where is he? Whenever you read of someone who has faced tremendous health challenges and has overcome them, there is always a loving, supportive spouse. When do I get mine?
As I wrote these words, little Rasputin came up to me and climbed onto my lap. I am very grateful that he has been sent from heaven to remind me that I am richly deserving of the very best love.
I am grateful to those friends who remembered the day, calling me with well wishes, posting Facebook comments, or sending a card. And dear Georgette, the Floridian pixie, Photoshopped me as a flirtatous faerie, which is now dangling from my living-room ceiling fan.
Despite the kindness of these friends, I'm feeling a little down, not much, just a little. I no longer stay down, as I did when I was a child or as I did until about six years ago when a lot of things shifted for me. And my downs are not so deep as they once were. Sometimes I feel down for only a few minutes now. Today it's been a few minutes here and there.
Birthdays, like holidays, help us mark the year. They're a time for us to reflect on what we've experienced during the past 12 months and on those things that seem ever-elusive. New Year's Eve, for example, has often been a down time for me, not just because I don't have a date (the first and last time that happened was 1976 with Rod at the Milwaukee Performing Arts Center), but that I think, "Another year and still no love to share it with."
I wonder when I will be with a love who will remember my birthday, go to sleep beside me, wake up next to me, kiss the back of my neck, and rub whatever he can of my taped-up belly. I wonder when I'll go on B&B weekends with a lover, when I'll be invited to parties at which everyone else is in a couple and I will be too, when I'll have someone to give me a ride home from the mechanic, when I'll find a man who actually wants to have sex and is capable of doing something in bed.
I was referred by the Renal Support Network to an article about a PD patient who was very reluctant to begin dialysis but received a transplant a few years back and is now having a wonderful life with her husband. This article is meant to inspire and encourage, but it has not done that for me. All the craziness I have been going through to get on the damn transplant wait list, and the craziness continues. Where will it end, and will it end with me on the wait list or simply having gone through all this drama just to be denied? And the loving, supportive husband--where is he? Whenever you read of someone who has faced tremendous health challenges and has overcome them, there is always a loving, supportive spouse. When do I get mine?
As I wrote these words, little Rasputin came up to me and climbed onto my lap. I am very grateful that he has been sent from heaven to remind me that I am richly deserving of the very best love.
Wednesday, July 29, 2009
Wait List Update
Thanks to everyone who has been praying on my behalf. Things are at a crossroads. It's far more complicated than this, but basically UCLA wants me to undergo another angiogram and possibly stent surgery before approving me for the wait list; however, the dye used for the angiogram can damage the kidneys, and I don't currently have any cardiac symptoms, so I feel the surgery is unnecessary.
Also, having the surgery does not guarantee I'll be placed on the list. So, my nephrologist is talking to the director of the transplant team to try to get him pinned down: What does he need to see with my heart to get me on the list? If the surgery is just as a preventative, I'm not interested in taking the risk to my kidneys. But if it would ensure my placement on the list, I'd be more agreeable.
So, at the moment, that's where things stand. Thanks so much for your continued support and affirmation. I am affirming that, if the angiogram is done, it will show that I have a completely new and healthy heart, as I have been telling my doctors for months. That it is better than it's ever been. I ask for you to see the same. Thanks so much.
Also, having the surgery does not guarantee I'll be placed on the list. So, my nephrologist is talking to the director of the transplant team to try to get him pinned down: What does he need to see with my heart to get me on the list? If the surgery is just as a preventative, I'm not interested in taking the risk to my kidneys. But if it would ensure my placement on the list, I'd be more agreeable.
So, at the moment, that's where things stand. Thanks so much for your continued support and affirmation. I am affirming that, if the angiogram is done, it will show that I have a completely new and healthy heart, as I have been telling my doctors for months. That it is better than it's ever been. I ask for you to see the same. Thanks so much.
Monday, July 27, 2009
That Delicious Feeling of a Steel Band Being Pulled Tight Across my Chest
Every once in a great while, I meet a man who excites me. In the past almost 10 years--since my last encounter with Mike--only seven men have given me that delicious feeling of a steel band being pulled tight across my chest, that crazy pain in my groin, that electricity shooting through my body.
One was a one-time massage client, my very last client of the day on my last day at a chiropractor's office back in 2000. An instant attraction. We met later for a long, fancy dinner. He was such a Southern gentleman, giving me compliments at every turn. Such sexual tension, but alas, he was married and lived in Atlanta. We almost kissed, but knew that if we did that, we'd do everything. I never saw or heard from him again.
Then there was the 21-year-old surfer. We had three fantastic bouts of kisses, one on a boat. One of the most erotic times I've ever had with anyone was fully clothed with him at an art museum. We took on other personalities. I was Svetlana, complete with a Russian accent, a cynical attitude, and black back-seamed nylons. He was a fish affecienado who was confused about his sexuality. Our favorite game outside the museum was me giving him verbal instructions as to how he was to adjust the passenger-side mirror on my van. That's the best: When there's the thinnest veil of propriety, when an outside observer might think that what we're doing and saying is completely on the up and up, perfectly normal, above board. And yet, to us, it's charged with sex. I told him he should relax about the age difference, think of me as a priestess in ancient Greece who would invite young men to the temple to be schooled in the ways of love. Though he told his parents of his feelings for me, when he found out I was 44 and not the late 30s he had suspected, that was too much for him.
With the third man I had a few amazing times, but the last was ho-hum. He is someone with so many commitments, personal and career, that he never had more than a few hours every six months or so to give me.
Charlie I've written about previously. We had some wonderful kisses in Flagstaff on one October afternoon in 2004, but he, too, was married, and I never saw him again.
When I danced with a stranger at a supper club late last year, I felt that sweet, agonizing pain in my groin. We exchanged numbers and were supposed to get together the following weekend, but he flaked. My friend Bev said he must have been married too.
The email-and-phone trysts with a craigslist guy nearly drove me insane with desire last summer. We never met in the flesh.
And lately I've had a crush on someone. The sexual tension goes both ways but most likely will never be voiced or acted upon because the societal roles we play make manifestation problematic. As with the young surfer, there is that intriguing and delicious duality of propriety and legitimate business vs. sexual undertones. But as long as nothing physical occurs, it's a feeling I can take out from time to time, as I would a book from a shelf. No harm in that.
Sure would be wonderful to have this feeling for someone who is available and who feels the same for me. Wouldn't that be something! But that seems like a fairyland, a world I heard about some time long ago in a dream. All the things I have been imagining! All the things I've been storing up since my days with Mike! WOW, I am so ready to let all that loose!
But it's possible that, like good health, I will have to wait until my next lifetime to actualize all the passion, love, intimacy, wonder, and craziness I've been stockpiling all these many years because letting it out with someone who doesn't thrill me would be so not happening, so dead. I have friends who tell me they don't aspire to feel the steel band being pulled tightly across their chests. That someone who is nice and they get along with is good enough. Well, that's not good enough for me. I'm too much of a romantic. I'm not interested in settling.
One was a one-time massage client, my very last client of the day on my last day at a chiropractor's office back in 2000. An instant attraction. We met later for a long, fancy dinner. He was such a Southern gentleman, giving me compliments at every turn. Such sexual tension, but alas, he was married and lived in Atlanta. We almost kissed, but knew that if we did that, we'd do everything. I never saw or heard from him again.
Then there was the 21-year-old surfer. We had three fantastic bouts of kisses, one on a boat. One of the most erotic times I've ever had with anyone was fully clothed with him at an art museum. We took on other personalities. I was Svetlana, complete with a Russian accent, a cynical attitude, and black back-seamed nylons. He was a fish affecienado who was confused about his sexuality. Our favorite game outside the museum was me giving him verbal instructions as to how he was to adjust the passenger-side mirror on my van. That's the best: When there's the thinnest veil of propriety, when an outside observer might think that what we're doing and saying is completely on the up and up, perfectly normal, above board. And yet, to us, it's charged with sex. I told him he should relax about the age difference, think of me as a priestess in ancient Greece who would invite young men to the temple to be schooled in the ways of love. Though he told his parents of his feelings for me, when he found out I was 44 and not the late 30s he had suspected, that was too much for him.
With the third man I had a few amazing times, but the last was ho-hum. He is someone with so many commitments, personal and career, that he never had more than a few hours every six months or so to give me.
Charlie I've written about previously. We had some wonderful kisses in Flagstaff on one October afternoon in 2004, but he, too, was married, and I never saw him again.
When I danced with a stranger at a supper club late last year, I felt that sweet, agonizing pain in my groin. We exchanged numbers and were supposed to get together the following weekend, but he flaked. My friend Bev said he must have been married too.
The email-and-phone trysts with a craigslist guy nearly drove me insane with desire last summer. We never met in the flesh.
And lately I've had a crush on someone. The sexual tension goes both ways but most likely will never be voiced or acted upon because the societal roles we play make manifestation problematic. As with the young surfer, there is that intriguing and delicious duality of propriety and legitimate business vs. sexual undertones. But as long as nothing physical occurs, it's a feeling I can take out from time to time, as I would a book from a shelf. No harm in that.
Sure would be wonderful to have this feeling for someone who is available and who feels the same for me. Wouldn't that be something! But that seems like a fairyland, a world I heard about some time long ago in a dream. All the things I have been imagining! All the things I've been storing up since my days with Mike! WOW, I am so ready to let all that loose!
But it's possible that, like good health, I will have to wait until my next lifetime to actualize all the passion, love, intimacy, wonder, and craziness I've been stockpiling all these many years because letting it out with someone who doesn't thrill me would be so not happening, so dead. I have friends who tell me they don't aspire to feel the steel band being pulled tightly across their chests. That someone who is nice and they get along with is good enough. Well, that's not good enough for me. I'm too much of a romantic. I'm not interested in settling.
Thursday, July 23, 2009
Rasputin, the Healer
Though Rasputin the historical figure is often given a bad rap, he had a healing effect on Alexis, the only son of Czar Nicholas and Czarina Alexandra of Russia. After the birth of four daughters, the royal couple was elated when Alexis, the long-awaited heir to the throne, was born. Tragically, he was also a hemophiliac. Rasputin, however, was able to still Alexis's episodes of bleeding. How he did this is not known. Some figure he was a hypnotist, but there is little to support this theory. Rasputin was decidedly a mystic, and I'm going to leave it at that.
Like his namesake, my little Rasputin has definitely had a healing effect on me. Approximately 10 years ago, my heart was literally and figuratively broken. It is then that Mike, the big love of my life, discarded me, and it is then that I developed cardiac symptoms.
I have done my damnest to find a new boyfriend. I take care of my looks, I dress nicely, I talk with guys, I go out on every first date I'm offered, I suggest coffee for those who may be too shy to ask me, I have belonged to at least a half dozen dating sites. And yet, love has eluded me. For this past decade I have slept alone every night.
And then just this past week, Rasputin became the first creature to fall asleep with me. I was sitting in the recliner, and he rested his little head against my chest and his little body against my tummy, and we both fell asleep. So sweet. How I wish I could experience that sweet feeling with a man, that sweetness of falling asleep with someone I love.
Other times Rasputin has sat on my lap with his head over my heart, and his back legs have twitched. This made me think of how, during a massage, I will sometimes flush out the pain or the psychic junk in a client by running my hand very quickly over the troubled area, unruffling the obstruction, clearing it from the body. I feel Rasputin has been doing this for me, clearing my body, and most especially my heart, of any obstructions that have been weighing it down.
Ever since Rasputin has come to live with us, I have had no chest pain. Though the chest pain and pressure had substantially decreased since I started dialysis, they were still there, primarily when I would walk any more than a short distance. Since Rasputin, I have had no pain upon walking or exercising in any other way. In fact, my heart does not keep me from doing anything I would like to do.
What's more, for the first time in 10 years, I am able to sleep on my side. I had always been a side sleeper, but upon the onset of chest pain, I was unable to do so because this put too much weight on my heart. I had to train myself to sleep on my back. Every once in a while I would attempt to lie on my side, but I could only do this for a minute or less before the constriction became unbearable. Now I can spend the whole night on my side if I want.
My friend Araia had always told me that a dog that really loves a human can serve as a conduit for healing the human's ailments. I know this is happening. My little Rasputin is healing my heart.
Like his namesake, my little Rasputin has definitely had a healing effect on me. Approximately 10 years ago, my heart was literally and figuratively broken. It is then that Mike, the big love of my life, discarded me, and it is then that I developed cardiac symptoms.
I have done my damnest to find a new boyfriend. I take care of my looks, I dress nicely, I talk with guys, I go out on every first date I'm offered, I suggest coffee for those who may be too shy to ask me, I have belonged to at least a half dozen dating sites. And yet, love has eluded me. For this past decade I have slept alone every night.
And then just this past week, Rasputin became the first creature to fall asleep with me. I was sitting in the recliner, and he rested his little head against my chest and his little body against my tummy, and we both fell asleep. So sweet. How I wish I could experience that sweet feeling with a man, that sweetness of falling asleep with someone I love.
Other times Rasputin has sat on my lap with his head over my heart, and his back legs have twitched. This made me think of how, during a massage, I will sometimes flush out the pain or the psychic junk in a client by running my hand very quickly over the troubled area, unruffling the obstruction, clearing it from the body. I feel Rasputin has been doing this for me, clearing my body, and most especially my heart, of any obstructions that have been weighing it down.
Ever since Rasputin has come to live with us, I have had no chest pain. Though the chest pain and pressure had substantially decreased since I started dialysis, they were still there, primarily when I would walk any more than a short distance. Since Rasputin, I have had no pain upon walking or exercising in any other way. In fact, my heart does not keep me from doing anything I would like to do.
What's more, for the first time in 10 years, I am able to sleep on my side. I had always been a side sleeper, but upon the onset of chest pain, I was unable to do so because this put too much weight on my heart. I had to train myself to sleep on my back. Every once in a while I would attempt to lie on my side, but I could only do this for a minute or less before the constriction became unbearable. Now I can spend the whole night on my side if I want.
My friend Araia had always told me that a dog that really loves a human can serve as a conduit for healing the human's ailments. I know this is happening. My little Rasputin is healing my heart.
Tuesday, July 21, 2009
Definitely a Friendly Neighborhood
On Saturday evening, I was out walking with Rasputin and friend Armando. I was wearing a fitted, hot-pink skirt, a white blouse, and pink flats and was carrying a matching pink purse. I always get plenty of attention when I wear this skirt, and Saturday evening was no exception.
A few blocks from the ocean, we came across a BBQ. About a dozen adults and a few small children were spilling out of an apartment onto the front steps and the sidewalk. The adults held beers, and one guy was grilling on a Webber set up in the grassy strip betweeen the sidewalk and the street. Because this party had no front yard, as the steps to the front door of the apartment came right down to the sidewalk, we had to pass through them to get to the ocean.
One woman called out to us as we passed, "I love your skirt!"
On the way back, we stopped to talk. The same woman came up to me, bottle in hand, with two small children clamoring about her knees. She had long, black hair and really gorgeous tatoos of flowers and birds up both arms. She wore a low-cut sun dress that showed off her ample breasts. She had definitely had a bit to drink.
She cooed, "Oh, I love your skirt. Hot pink. Where did you get it?" Goodwill, I told her. Then she moved closer. "Can I touch your butt?" she asked. Sure, go for it. She rubbed my butt with her open palm. As this is a silk-lined skirt, this felt very nice.
"Oh, what an ass!" she declared. "You should all feel this ass!"
The men looked at me, then at Armando. As he said later, if he had not been there, they probably would have taken turns.
More friends of the birthday girl--you guessed it, the brunette with the tatoos--arrived, and she went to greet them, leaving my butt behind.
I just laughed and smiled about her all the way home. What a friendly neighborhood we live in!
The next day, my son and I passed the party apartment on our evening walk with Rasputin. Two hungover men were sitting on the steps. "How late did the party go?" I asked, reminding them that I was the gal with the nice ass. "It's still going on for some," one said, "and it'll be going on until Tuesday."
Wow, four days of partying! If they do that for all of the adults' birthdays, that's 48 days of partying a year just there. Then add all the holidays, and you begin to wonder how these folks make their drinking money.
A few blocks from the ocean, we came across a BBQ. About a dozen adults and a few small children were spilling out of an apartment onto the front steps and the sidewalk. The adults held beers, and one guy was grilling on a Webber set up in the grassy strip betweeen the sidewalk and the street. Because this party had no front yard, as the steps to the front door of the apartment came right down to the sidewalk, we had to pass through them to get to the ocean.
One woman called out to us as we passed, "I love your skirt!"
On the way back, we stopped to talk. The same woman came up to me, bottle in hand, with two small children clamoring about her knees. She had long, black hair and really gorgeous tatoos of flowers and birds up both arms. She wore a low-cut sun dress that showed off her ample breasts. She had definitely had a bit to drink.
She cooed, "Oh, I love your skirt. Hot pink. Where did you get it?" Goodwill, I told her. Then she moved closer. "Can I touch your butt?" she asked. Sure, go for it. She rubbed my butt with her open palm. As this is a silk-lined skirt, this felt very nice.
"Oh, what an ass!" she declared. "You should all feel this ass!"
The men looked at me, then at Armando. As he said later, if he had not been there, they probably would have taken turns.
More friends of the birthday girl--you guessed it, the brunette with the tatoos--arrived, and she went to greet them, leaving my butt behind.
I just laughed and smiled about her all the way home. What a friendly neighborhood we live in!
The next day, my son and I passed the party apartment on our evening walk with Rasputin. Two hungover men were sitting on the steps. "How late did the party go?" I asked, reminding them that I was the gal with the nice ass. "It's still going on for some," one said, "and it'll be going on until Tuesday."
Wow, four days of partying! If they do that for all of the adults' birthdays, that's 48 days of partying a year just there. Then add all the holidays, and you begin to wonder how these folks make their drinking money.
Friday, July 17, 2009
Rasputin and I Are Proud of Our Pee
Rasputin and I are proud of our pee. There's no getting around the fact. Unlike most people, who are just happy to relieve themselves once in a while, relieving himself is not Rasputin's aim. Rather, he marks trees, fenceposts, and sign poles with his urine, constantly amazing me by always having some to spare for the next landmark. He is not into blowing his stash in one place. No sir, it's far too precious!
I, too, am proud of my pee, but for a different reason. Each time I pee, I say a big thank you, as peeing means that my kidneys are still doing something. They haven't completely shut down.
Granted, I don't pee nearly as much as I used to, since most of my fluids are expelled during dialysis. But the mere fact that I do pee is always cause for a little celebration, even though it's just me who's celebrating.
Anyone who's reading this, take note. The next time you pee, say a little thank you. Your kidneys are working! This is a great gift.
I, too, am proud of my pee, but for a different reason. Each time I pee, I say a big thank you, as peeing means that my kidneys are still doing something. They haven't completely shut down.
Granted, I don't pee nearly as much as I used to, since most of my fluids are expelled during dialysis. But the mere fact that I do pee is always cause for a little celebration, even though it's just me who's celebrating.
Anyone who's reading this, take note. The next time you pee, say a little thank you. Your kidneys are working! This is a great gift.
Wednesday, July 15, 2009
By Any Chance, Are Your Relatives From Minnesota?
Though my new apartment is a truly happy and sunny place, and though I really like it a whole bunch, it does not have an on-site washer and dryer. So, I'm back to the laundromat.
Yesterday I stepped foot in one that's a few blocks from home. Shortly after I arrived, a man approached me. "By any chance, are your relatives from Minnesota?" he asked. I smiled widely and replied, "Well, as a matter of fact, they are."
My mother was born on a farm in southern Minnesota, and most of my cousins and their kids are still living in the state.
This man, who was named Ray, thought I looked Swedish, and as a Swedish woman he'd met years ago--maybe decades ago--had been from Minnesota, he figured I might be too.
Ray wondered if I were familiar with Rush, Illinois, a town about two and a half hours from Chicago. I believe he had kept Rush in his consciousness for decades because of another gal who had hailed from there. Sad to say, I had never heard of Rush.
Ray was quite a character. Probably 85 if he was a day, wearing a sea captain's hat and pants that were way too big for him.
Turns out, Ray wss into maps. When I told my son this, he quipped, "Oh, good, so now that makes two of you."
At first Ray and I drew maps in the air for each other. I was sure that Iowa is west of the Mississippi, but Ray needed some convincing. He also needed a little help with the positions of Wisconsin, Minnesota, and Illinois. Finally, he came around.
He said if I liked maps, he had something to show me. He pulled a Lyndon LaRouche magazine from the rack on the wall, then paused before opening it. "This publication is so right wing," he said, "I thought I might be going insane reading it." That's always been my experience of LaRouche materials and his fanatical followers.
Amidst all the political hoopla and prophesies of doom was an article on the the great train adventures of the world. Ray pointed to a map of Europe and confessed that he would like to take the Trans-Siberian Railroad some day. Wow, good for him to keep the dreams coming!
The conversation drifted to my former home of Point Arena in Mendocino County. Ray had lived in Los Angeles for 33 years, but he often went on road trips on the weekends and during his vacations. He was very familiar with Hwy 1 north of San Francisco. He nodded and took in a deep breath, remembering the beauty he had apprehended there.
All about us, solitary people went about their business, loading washers and dryers with coins and folding clothes, while Ray and I swapped stories and had a few laughs. So interesting how often this happens to me at laundramats, something I had forgotten until yesterday. So often over the years people have approached me in laundromats and told me their stories, like the woman who related the very complicated case of her run-in with city authorities or the young traveling salesman who had lived in 26 states as an adult and as many foster homes as a child.
This is why, once again, I am reminded of the truth: "There is nothing good or bad, but thinking makes it so." Many would say it's too bad that I don't have use of a washer and dryer in the building where I live or that I don't own a washer and dryer in my own home. But these are probably the same people who wouldn't have given Ray the time of day. Look how much I have gained from what many would label a loss.
Yesterday I stepped foot in one that's a few blocks from home. Shortly after I arrived, a man approached me. "By any chance, are your relatives from Minnesota?" he asked. I smiled widely and replied, "Well, as a matter of fact, they are."
My mother was born on a farm in southern Minnesota, and most of my cousins and their kids are still living in the state.
This man, who was named Ray, thought I looked Swedish, and as a Swedish woman he'd met years ago--maybe decades ago--had been from Minnesota, he figured I might be too.
Ray wondered if I were familiar with Rush, Illinois, a town about two and a half hours from Chicago. I believe he had kept Rush in his consciousness for decades because of another gal who had hailed from there. Sad to say, I had never heard of Rush.
Ray was quite a character. Probably 85 if he was a day, wearing a sea captain's hat and pants that were way too big for him.
Turns out, Ray wss into maps. When I told my son this, he quipped, "Oh, good, so now that makes two of you."
At first Ray and I drew maps in the air for each other. I was sure that Iowa is west of the Mississippi, but Ray needed some convincing. He also needed a little help with the positions of Wisconsin, Minnesota, and Illinois. Finally, he came around.
He said if I liked maps, he had something to show me. He pulled a Lyndon LaRouche magazine from the rack on the wall, then paused before opening it. "This publication is so right wing," he said, "I thought I might be going insane reading it." That's always been my experience of LaRouche materials and his fanatical followers.
Amidst all the political hoopla and prophesies of doom was an article on the the great train adventures of the world. Ray pointed to a map of Europe and confessed that he would like to take the Trans-Siberian Railroad some day. Wow, good for him to keep the dreams coming!
The conversation drifted to my former home of Point Arena in Mendocino County. Ray had lived in Los Angeles for 33 years, but he often went on road trips on the weekends and during his vacations. He was very familiar with Hwy 1 north of San Francisco. He nodded and took in a deep breath, remembering the beauty he had apprehended there.
All about us, solitary people went about their business, loading washers and dryers with coins and folding clothes, while Ray and I swapped stories and had a few laughs. So interesting how often this happens to me at laundramats, something I had forgotten until yesterday. So often over the years people have approached me in laundromats and told me their stories, like the woman who related the very complicated case of her run-in with city authorities or the young traveling salesman who had lived in 26 states as an adult and as many foster homes as a child.
This is why, once again, I am reminded of the truth: "There is nothing good or bad, but thinking makes it so." Many would say it's too bad that I don't have use of a washer and dryer in the building where I live or that I don't own a washer and dryer in my own home. But these are probably the same people who wouldn't have given Ray the time of day. Look how much I have gained from what many would label a loss.
Affirmation of Blessed Relationship
When I was going through some papers, I happened upon a folder I had opened March 26, 1998. I remember the day very clearly. I was hanging out at a McDonald's, reading and writing the day away as I waited for my van to be fixed. I had called my boyfriend Mike in Northern California, and he had said something cruel.
This is how Mike often operated: He and I would have a beautiful, intimate time together, a time in which you wouldn't think two people could possibly be any closer, and he would follow up by saying something dismissive, insensitive, and cruel. Years later this behavior was explained to me: Mike had low self-worth and was intimidated by me. In one sense, he wanted very much to be with me, and in another sense, it terrified him. Plus, he was an alcoholic, though he only drank twice in the four years I was with him. He nonetheless exhibited alcoholic behavior, i.e. destroying everything good in his life and fluctuating between delusions of grandeur and self-deprecation. Mike wanted the emotional and physical intimacy I offered, but he felt unworthy of it, so he made himself unworthy.
I can't remember what he said, only that it hurt me very deeply. I decided to sit right down at McDonald's and write down exactly what I wanted in a relationship. I wrote several versions that day, revising criteria, adding and modifying and recasting, until I finally hit upon a final draft. Then for more than two years, until April 13, 2000, I rewrote the affirmation, each time reaffirming what I wanted. In the folder were more than 100 handwritten and typed copies of the affirmation.
Looking at it almost a decade later, I would say that this is still what I want. Here goes, one last time, then I'm tossing the foler, releasing it completely to God's hands:
Affirmation of Blessed Relationship
Formulated 3/26/98
I am richly deserving of holy relationship with a God/dess-centered, honest, moral, loving, generous, sensitive, passionate, romantic, tantric-adept, supportive, understanding, responsible, mature, financially secure, unpretentious, emotionally healthy, physically independent, life-affirming, optimistic, fun-loving, playful, adventuresome, attractive, intelligent, humorous,. compassionate, faithful, “present,” heterosexual, “available” man of compatible age, education, income, interests, outlook and locale.
Holding to the truth that God/dess deeply loves me, wants me to be happy and fulfilled, and gently guides my path, I will attract this man into my life. I will immediately recognize him as the treasure I have already joined with in my soul. He will immediately recognize me as the treasure who has come into his life through prayer, since he has been awaiting my arrival too. He will know me, since I will embody those traits I seek in him, my soulmate, my beloved—traits he has been seeking in his soulmate, his beloved, the woman he will come to know as Heidi, the outer manifestation of his inner quest.
We will enter into lifelong commitment, bonds of strange and sacred intimacy, a shared vision of holy purpose, with joyfulness, courage and whole-hearted openness, celebrating each night and day the great and blessed gift God/dess has granted us through and with this love.
All this will come to pass, beautifully, magically, effortlessly, and very soon.
Amen!
This is how Mike often operated: He and I would have a beautiful, intimate time together, a time in which you wouldn't think two people could possibly be any closer, and he would follow up by saying something dismissive, insensitive, and cruel. Years later this behavior was explained to me: Mike had low self-worth and was intimidated by me. In one sense, he wanted very much to be with me, and in another sense, it terrified him. Plus, he was an alcoholic, though he only drank twice in the four years I was with him. He nonetheless exhibited alcoholic behavior, i.e. destroying everything good in his life and fluctuating between delusions of grandeur and self-deprecation. Mike wanted the emotional and physical intimacy I offered, but he felt unworthy of it, so he made himself unworthy.
I can't remember what he said, only that it hurt me very deeply. I decided to sit right down at McDonald's and write down exactly what I wanted in a relationship. I wrote several versions that day, revising criteria, adding and modifying and recasting, until I finally hit upon a final draft. Then for more than two years, until April 13, 2000, I rewrote the affirmation, each time reaffirming what I wanted. In the folder were more than 100 handwritten and typed copies of the affirmation.
Looking at it almost a decade later, I would say that this is still what I want. Here goes, one last time, then I'm tossing the foler, releasing it completely to God's hands:
Affirmation of Blessed Relationship
Formulated 3/26/98
I am richly deserving of holy relationship with a God/dess-centered, honest, moral, loving, generous, sensitive, passionate, romantic, tantric-adept, supportive, understanding, responsible, mature, financially secure, unpretentious, emotionally healthy, physically independent, life-affirming, optimistic, fun-loving, playful, adventuresome, attractive, intelligent, humorous,. compassionate, faithful, “present,” heterosexual, “available” man of compatible age, education, income, interests, outlook and locale.
Holding to the truth that God/dess deeply loves me, wants me to be happy and fulfilled, and gently guides my path, I will attract this man into my life. I will immediately recognize him as the treasure I have already joined with in my soul. He will immediately recognize me as the treasure who has come into his life through prayer, since he has been awaiting my arrival too. He will know me, since I will embody those traits I seek in him, my soulmate, my beloved—traits he has been seeking in his soulmate, his beloved, the woman he will come to know as Heidi, the outer manifestation of his inner quest.
We will enter into lifelong commitment, bonds of strange and sacred intimacy, a shared vision of holy purpose, with joyfulness, courage and whole-hearted openness, celebrating each night and day the great and blessed gift God/dess has granted us through and with this love.
All this will come to pass, beautifully, magically, effortlessly, and very soon.
Amen!
Sunday, July 12, 2009
Something Good is Going to Happen to Me Today
Isis (see yesterday's entry) recommended that I attend a healing meeting at the Long Beach Convention Center last Saturday. When Aaron and I arrived, there were approximately 800 people in the auditorium. We could only stay for an hour and a half, but that was powerful enough. I was near tears and was especially touched when the minister asked each of us to turn to our neighbor and tell him or her that something good was going to happen to him or her today and to receive the same blessing in return. This "expectancy of good" has stuck with me.
Last night while walking Rasputin, the thought that something good is going to happen to me filled my consciousness. I also remembered my friend Tim Howard's words about how blessings are going to rush over me like a river, not a little trickle here or there, he said, but a mighty river. These thoughts filled me with joy as I walked along, taking in the beauty of the trees, flowers, birdsong, and the slanted sunlight on adobe walls.
The next thing I knew a woman was calling out to me by name. It was Yolanda, with whom I had worked at an ad agency two summers ago. Yolanda is the closest I've ever come to having a full-on crush on a woman. But that's completely understandable, as everyone had a crush on Yolanda. She dressed in '40s and '50s attire, complete with Bakelite jewelry (see image), period handbags, and that classic '40s bob (see image). Men half her age would quite literally sit at her feet. She was smart and sassy and had the greatest expressions, like "Ain't no hill for a high-stepper." She would say things to completely disarm and at the same time charm her co-workers. For example, once when a young intern bumped into her from behind, she turned to him and said, "Aw, now you're stalking me, aren't you? How precious!"
Despite Yolanda's playfulness, she was one hell of a proofreader. She would find the tiniest problems in consistency. She was an absolute terror when it came to copy.
So, in short, when my assignment with the ad agency ended, I always hoped I would run into Yolanda sometime in Long Beach, as she had told me she and her husband owned a craftsman-style house in the Rose Park historic district. Well, ask and you shall receive, but just in God's sweet time.
I had heard that the agency where we'd worked had closed because it lost the Verizon and Walmart accounts. She said she was unemployed for a while, but is now working at a pharmaceutical company. She says most people would find this really boring, but she loves it. It's very detailed, and she has to be much more alert than she was at her previous job. She really loves proofing the schematics of the chemical structures. Wow, more power to her!
What a brightness Yolanda is! So happy to run into her and know that she lives only a few blocks away.
She dearly loved Rasputin and even gave him a kiss on his snout. She said her cats would be so jealous, but that she couldn't help herself. She said there's no question that this Rasputin could also single-handedly take down czarist Russsia, if he had a mind to.
Last night while walking Rasputin, the thought that something good is going to happen to me filled my consciousness. I also remembered my friend Tim Howard's words about how blessings are going to rush over me like a river, not a little trickle here or there, he said, but a mighty river. These thoughts filled me with joy as I walked along, taking in the beauty of the trees, flowers, birdsong, and the slanted sunlight on adobe walls.
The next thing I knew a woman was calling out to me by name. It was Yolanda, with whom I had worked at an ad agency two summers ago. Yolanda is the closest I've ever come to having a full-on crush on a woman. But that's completely understandable, as everyone had a crush on Yolanda. She dressed in '40s and '50s attire, complete with Bakelite jewelry (see image), period handbags, and that classic '40s bob (see image). Men half her age would quite literally sit at her feet. She was smart and sassy and had the greatest expressions, like "Ain't no hill for a high-stepper." She would say things to completely disarm and at the same time charm her co-workers. For example, once when a young intern bumped into her from behind, she turned to him and said, "Aw, now you're stalking me, aren't you? How precious!"
Despite Yolanda's playfulness, she was one hell of a proofreader. She would find the tiniest problems in consistency. She was an absolute terror when it came to copy.
So, in short, when my assignment with the ad agency ended, I always hoped I would run into Yolanda sometime in Long Beach, as she had told me she and her husband owned a craftsman-style house in the Rose Park historic district. Well, ask and you shall receive, but just in God's sweet time.
I had heard that the agency where we'd worked had closed because it lost the Verizon and Walmart accounts. She said she was unemployed for a while, but is now working at a pharmaceutical company. She says most people would find this really boring, but she loves it. It's very detailed, and she has to be much more alert than she was at her previous job. She really loves proofing the schematics of the chemical structures. Wow, more power to her!
What a brightness Yolanda is! So happy to run into her and know that she lives only a few blocks away.
She dearly loved Rasputin and even gave him a kiss on his snout. She said her cats would be so jealous, but that she couldn't help herself. She said there's no question that this Rasputin could also single-handedly take down czarist Russsia, if he had a mind to.
If Rasputin Were a Man
If Rasputin were a man, I would have told him about an hour into the relationship to go to work, get a life, stop thinking I'm his be all and end all. If a man followed me around the apartment, was fascinated by everything--and I mean everything--that I did, constantly stared at me, and whined with separation anxiety when I took out the garbage, I'd be over him so quickly. But as it's a dog that's doing this, it's a whole different story.
Right now he's lying in the recliner about four inches away from the desk. He used to lie on the floor behind the recliner and look up at me as I typed. Just now he discovered that he could jump into the recliner and be that much closer to his beloved.
He's dropping into a snooze. No doubt he's dreaming about the next time Heidi will rub his belly or scratch his head or give him a whole bunch of love. The little guy is absolutely obsessed.
Right now he's lying in the recliner about four inches away from the desk. He used to lie on the floor behind the recliner and look up at me as I typed. Just now he discovered that he could jump into the recliner and be that much closer to his beloved.
He's dropping into a snooze. No doubt he's dreaming about the next time Heidi will rub his belly or scratch his head or give him a whole bunch of love. The little guy is absolutely obsessed.
Saturday, July 11, 2009
Meet Rasputin!
Aaron and I have been visiting the pound ever since I found our new apartment. I was taking one of my evening walks in early June when I spied the For Rent sign on which appeared the words "pet friendly." I'd found a place that accepts dogs, and I jumped on it. We moved in at the end of June, and getting a dog has been on our minds since then.
Last week Aaron spied the dog that I would name Rasputin. An 11-pound chihuahua mix with chocolate-lab fur and white feet and chest. He is three years old and quite calm. Not a jumper or a barker. He has big, expressive eyes. He's a love bucket.(The photos posted here don't do him justice. These were shot in low light, and he has his moon collar on to prevent him from licking his stitches.)
He had to be neutered before we could take him home, so we picked him up from the animal hospital yesterday morning. He's really taken to me, following me wherever I go, staring at me, content to be constantly petted and rubbed and massaged by me, but not a beggar for affection if I leave him alone. He has toys, but he prefers to just look at me.
Aaron has had a more difficult time with Rasputin. He took him for a walk yesterday afternoon, and Rasputin broke his collar and ran away. Aaron ran after him for blocks, and Rasputin almost got hit when he dashed across Fourth Street. Eventually, Aaron and a passing motorist who stopped to help cornered the little guy. Later, when Aaron tried to put him in the cage he is to be in when we're not home, Rasputin bit him. Though yesterday and most of today Rasputin backed away from Aaron or made himself scarce when he was in the room, he is eventually warming up to him, allowing him to pet and feed him.
Aaron has said several times that he really missed not having a real pet throughout his entire childhood and young adulthood--gerbile and suicidal goldfish not included. Aaron really wants to form a bond with Rasputin, and I'm sure that Rasputin will grow more comfortable with him and loving toward him in time. Perhaps he associates Aaron with his traumatic attempt at escape and his brush with death on Fourth Street. (When I walked Rasputin this morning, he refused to walk on the street side of Fourth. Instead he walked as far away from the traffic as possible.)
Why "Rasputin"? Let me count the ways:
* From a young girl on, I have been fascinated by the historical figure.
* Our little dog has a bear face, which somehow makes me think of Russia.
* We lived next door to monks at our previous residence and now this one too. So why not live with a dog with a monk's name?
* It's unique. I've never heard of a dog named Rasputin.
* The name seems to fit him because, like his namesake, who single-handedly brought down czarist Russia by having sex with virtually every female member of the Russian court, our little Rasputin is a lady's man, preferring attention from women and a bit standoffish with men.
I am so in love with Rasputin. I am so happy to have this little love bucket around. He does wonders for my mood, and I'm sure he will have a positive effect on my health. Thank you, thank you, thank you, Rasputin, for coming into our lives!
Last week Aaron spied the dog that I would name Rasputin. An 11-pound chihuahua mix with chocolate-lab fur and white feet and chest. He is three years old and quite calm. Not a jumper or a barker. He has big, expressive eyes. He's a love bucket.(The photos posted here don't do him justice. These were shot in low light, and he has his moon collar on to prevent him from licking his stitches.)
He had to be neutered before we could take him home, so we picked him up from the animal hospital yesterday morning. He's really taken to me, following me wherever I go, staring at me, content to be constantly petted and rubbed and massaged by me, but not a beggar for affection if I leave him alone. He has toys, but he prefers to just look at me.
Aaron has had a more difficult time with Rasputin. He took him for a walk yesterday afternoon, and Rasputin broke his collar and ran away. Aaron ran after him for blocks, and Rasputin almost got hit when he dashed across Fourth Street. Eventually, Aaron and a passing motorist who stopped to help cornered the little guy. Later, when Aaron tried to put him in the cage he is to be in when we're not home, Rasputin bit him. Though yesterday and most of today Rasputin backed away from Aaron or made himself scarce when he was in the room, he is eventually warming up to him, allowing him to pet and feed him.
Aaron has said several times that he really missed not having a real pet throughout his entire childhood and young adulthood--gerbile and suicidal goldfish not included. Aaron really wants to form a bond with Rasputin, and I'm sure that Rasputin will grow more comfortable with him and loving toward him in time. Perhaps he associates Aaron with his traumatic attempt at escape and his brush with death on Fourth Street. (When I walked Rasputin this morning, he refused to walk on the street side of Fourth. Instead he walked as far away from the traffic as possible.)
Why "Rasputin"? Let me count the ways:
* From a young girl on, I have been fascinated by the historical figure.
* Our little dog has a bear face, which somehow makes me think of Russia.
* We lived next door to monks at our previous residence and now this one too. So why not live with a dog with a monk's name?
* It's unique. I've never heard of a dog named Rasputin.
* The name seems to fit him because, like his namesake, who single-handedly brought down czarist Russia by having sex with virtually every female member of the Russian court, our little Rasputin is a lady's man, preferring attention from women and a bit standoffish with men.
I am so in love with Rasputin. I am so happy to have this little love bucket around. He does wonders for my mood, and I'm sure he will have a positive effect on my health. Thank you, thank you, thank you, Rasputin, for coming into our lives!
Healing Scriptures
A wonderful woman and former student of mine, Isis Roberts, a woman who is blessed with beauty, intelligence, athletic ability, and a loving personality (pictured here on the right), has taken a personal interest in my healing. She recently sent me several pages of Scripture applicable to healing. All the passages were inspirational and life-affirming, but when I got to Mark 5, I wept. It struck me so deeply and so profoundly. Here it is:
Mark 5:25-34 And a certain woman, which had an issue of blood twelve years, and had suffered many things of many physicians, and had spent all that she had, and was nothing bettered, but rather grew worse. When she had heard of Jesus, came in the press behind, and touched his garment. For she said, If I may touch but his clothes, I shall be whole. And straightway the fountain of her blood was dried up; and she felt in her body that she was healed of that plague. And Jesus, immediately knowing in himself that virtue had gone out of him, turned him about in the press, and said, Who touched my clothes? And his disciples said unto him, Thou seest the multitude thronging thee, and sayest thou, Who touched me? And he looked round about to see her that had done this thing. But the woman fearing and trembling, knowing what was done in her, came and fell down before him, and told him all the truth. And he said unto her, Daughter, thy faith hath made thee whole; go in peace, and be whole of thy plague. (KJV)
Mark 5:25-34 And a certain woman, which had an issue of blood twelve years, and had suffered many things of many physicians, and had spent all that she had, and was nothing bettered, but rather grew worse. When she had heard of Jesus, came in the press behind, and touched his garment. For she said, If I may touch but his clothes, I shall be whole. And straightway the fountain of her blood was dried up; and she felt in her body that she was healed of that plague. And Jesus, immediately knowing in himself that virtue had gone out of him, turned him about in the press, and said, Who touched my clothes? And his disciples said unto him, Thou seest the multitude thronging thee, and sayest thou, Who touched me? And he looked round about to see her that had done this thing. But the woman fearing and trembling, knowing what was done in her, came and fell down before him, and told him all the truth. And he said unto her, Daughter, thy faith hath made thee whole; go in peace, and be whole of thy plague. (KJV)
Thursday, July 09, 2009
Concentrated Prayer
More than a month ago, my cardiologist told me that the UCLA cardiologist, Dr. Van Herle, was poised to recommend me as a transplant candidate to the transplant team. After much delay and waivering, now things don't seem so certain. So I am asking all who read this blog to please engage in affirmational prayer on my behalf. Please see Dr. Van Herle giving her OK to the transplant team, which will in turn put me on the wait list for a kidney and a pancreas. Please see all of us--doctors, donor, support staff, family, friends, and me--surrounded in healing, loving light. Affirm this as if it has already occurred. Thanks so much. Prayer is powerful. I know it can move these doctors.
Friday, July 03, 2009
From Out of Nowhere, a Medical Emergency
On Wednesday evening, my son and I were taking a walk as we often do after dinner. At first my calves hurt, and then I felt a little constriction in my chest. About a mile into the walk, I became exremely dizzy. I couldn't walk straight. I felt as if I were drunk or on a boat in high seas.
I sat down on a bus-stop bench while Aaron bought some OJ at a liquor store. If my blood sugar were the problem, downing 8 oz. of orange juice should have stabilized me, but it didn't. Not only was I dizzy now, but I was also dizzy when I closed my eyes. What was worse: The world was heaving, spinning, and seesawing.
Aaron walked home while I awaited his return with the car. I needed his help to walk. Upon arriving home, I called the PD nurse at the after-hours number. She asked me to check my blood sugar and blood pressure. The former was 74, so it must have been a lot lower prior to the OJ. My BP was 189/104 and climbed to 205/130 by the time the paramedics arrived. (For the past two weeks, my BP had been around 110/60 every day, and I check it twice daily and keep the results in my patient log.)
I was so dizzy I couldn't stand, so they had to carry me to the gurney. Because the Long Beach paramedics don't drive to Kaiser Bellflower, I was taken to Memorial and treated there in the ER with nitrogylcerin and morphine. I asked for an anti-emetic (a drug to stop nausea)--a word I learned during my editing days for the Chinese medicine firm. I threw up dinner twice. Felt much better after that.
Because there were no empty beds at Kaiser Bellflower, I was transferred to Kaiser Harbor City about 5 a.m., where I stayed until 3 the next day.
No one can really say what happened. Perhaps I had low blood sugar, which triggered the dizziness, and then stress induced the high blood pressure. But the dizziness should have subsided upon raising my blood sugar, but it didn't for several hours. Perhaps it was sudden-onset vertigo. A doctor prescribed a med to carry with me in case I should ever have another episode.
Following my release, Aaron took me home. I felt tired and laid down without taking my blood sugar first. Aaron woke me up because some friends had walked over from their nearby apartment for a visit. At first I thought he was a paramedic. My sheets and clothing were drenched in sweat. He recognized this as a sure sign of low blood sugar--the adrenaline sweat. He took my blood sugar--39, a dangerously low level. He brought me OJ, but I had trouble swallowing, so he called the paramedics. One of them had also responded the night before.
By the time they arrived, I was still confused but more coherent and alert. No need to go to the ER.
Despite the drama, ridiculously painful IV, and crazy-making dizziness, two things I am very grateful for: Aaron's support and that it wasn't a heart attack. Amen!
I sat down on a bus-stop bench while Aaron bought some OJ at a liquor store. If my blood sugar were the problem, downing 8 oz. of orange juice should have stabilized me, but it didn't. Not only was I dizzy now, but I was also dizzy when I closed my eyes. What was worse: The world was heaving, spinning, and seesawing.
Aaron walked home while I awaited his return with the car. I needed his help to walk. Upon arriving home, I called the PD nurse at the after-hours number. She asked me to check my blood sugar and blood pressure. The former was 74, so it must have been a lot lower prior to the OJ. My BP was 189/104 and climbed to 205/130 by the time the paramedics arrived. (For the past two weeks, my BP had been around 110/60 every day, and I check it twice daily and keep the results in my patient log.)
I was so dizzy I couldn't stand, so they had to carry me to the gurney. Because the Long Beach paramedics don't drive to Kaiser Bellflower, I was taken to Memorial and treated there in the ER with nitrogylcerin and morphine. I asked for an anti-emetic (a drug to stop nausea)--a word I learned during my editing days for the Chinese medicine firm. I threw up dinner twice. Felt much better after that.
Because there were no empty beds at Kaiser Bellflower, I was transferred to Kaiser Harbor City about 5 a.m., where I stayed until 3 the next day.
No one can really say what happened. Perhaps I had low blood sugar, which triggered the dizziness, and then stress induced the high blood pressure. But the dizziness should have subsided upon raising my blood sugar, but it didn't for several hours. Perhaps it was sudden-onset vertigo. A doctor prescribed a med to carry with me in case I should ever have another episode.
Following my release, Aaron took me home. I felt tired and laid down without taking my blood sugar first. Aaron woke me up because some friends had walked over from their nearby apartment for a visit. At first I thought he was a paramedic. My sheets and clothing were drenched in sweat. He recognized this as a sure sign of low blood sugar--the adrenaline sweat. He took my blood sugar--39, a dangerously low level. He brought me OJ, but I had trouble swallowing, so he called the paramedics. One of them had also responded the night before.
By the time they arrived, I was still confused but more coherent and alert. No need to go to the ER.
Despite the drama, ridiculously painful IV, and crazy-making dizziness, two things I am very grateful for: Aaron's support and that it wasn't a heart attack. Amen!
Tuesday, June 30, 2009
First-in-a-Lifetime Experience
As I have done at least a dozen times in my life, I worked hard for the last two days scrubbing my old apartment in the hopes of recooping at least some of my deposit. In the past, the landlord has always taken a good chunk regardless of my former abode's condition. This time, however, my work paid off. The landlord met me as I was completing the finishing touches on the carpet cleaning, looked the place over, and wrote me a check on the spot for the full amount of the deposit. Wow! Much gratitude and joy for the $900 in my pocket tonight.
Thursday, June 25, 2009
Living Next to Monks Again--What Are the Chances?
I recently moved from 666 Molino Ave. Apt. 6 to my new abode on Freeman just south of Fourth Street. Despite my previous address's ominious numerology, it was a beautiful, sunny place right next door to a monastery. I hadn't known this until after I'd moved in. but I was just a few feet away from Morningland, a New Age cult of white-garbed, placcid-looking adherents to a mixture of Eastern and Western mythology with a little Star Trek thrown in. For an even-handed report on Morningland's search last summer for its sacred missing tortoise, see my former student Jennifer Stockdale's piece from the District Weekly.
The Morningland folk were always very pleasant and polite. When I asked them to please tone down the music after 10 p.m., they did so. I enjoyed the singing during the day and early evening; in fact, I have such beautiful memories of lying face up on my bed during a few summer afternoons as a light breeze entered my windows and I let the forceful voice of a Morningland soloist wash over me.
The chances of living nextdoor to a monastery once in one's lifetime are rather slim, I'd say. But now I find that, once again, my neighbors are monks, this time of the Tibetan Buddhist variety, complete with prayer flags, shaved heads, and maroon robes. At this moment I am looking out my living room windows, across the 10 feet that separate me from their plum-painted craftsman-style house.
I can't help but believe that there is some sort of divine intervention going on here. Unlike the Morninglanders, who I found nice but a tiny bit strange, the Tibetans are folks I'm eager to get to know. They are a quiet bunch, and I have not yet made contact, but would really love to develop a friendship. Since I was a very young girl, I have dreamed of visiting Tibet. Perhaps these monks are an answer to my prayers.
The Morningland folk were always very pleasant and polite. When I asked them to please tone down the music after 10 p.m., they did so. I enjoyed the singing during the day and early evening; in fact, I have such beautiful memories of lying face up on my bed during a few summer afternoons as a light breeze entered my windows and I let the forceful voice of a Morningland soloist wash over me.
The chances of living nextdoor to a monastery once in one's lifetime are rather slim, I'd say. But now I find that, once again, my neighbors are monks, this time of the Tibetan Buddhist variety, complete with prayer flags, shaved heads, and maroon robes. At this moment I am looking out my living room windows, across the 10 feet that separate me from their plum-painted craftsman-style house.
I can't help but believe that there is some sort of divine intervention going on here. Unlike the Morninglanders, who I found nice but a tiny bit strange, the Tibetans are folks I'm eager to get to know. They are a quiet bunch, and I have not yet made contact, but would really love to develop a friendship. Since I was a very young girl, I have dreamed of visiting Tibet. Perhaps these monks are an answer to my prayers.
Tuesday, June 16, 2009
Prayers for Ron and Susie
Please see Ron's body accepting his new kidney. Please see Susie calm and rested and knowing that she absolutely made the right decision to give Ron one of her kidneys, no matter what the outcome. White light both of them, even though you have never met them. See them surrounded by pure, healing, revujenating light that nourishes every cell in their bodies and calms all their fears and second-guessing.
Susie is doing fine, physically. Ron, who initially seemed to accept his "perfect match" kidney, is now facing some challenges. Don't see these challenges but instead see the perfect outcome of Ron accepting the kidney as if it were his own and Susie remaining a forceful advocate for donation, a woman who will go on to write of her experience and so persuade many others to do the same. This is what Susie envisioned, and this is what I see her receiving.
Susie is doing fine, physically. Ron, who initially seemed to accept his "perfect match" kidney, is now facing some challenges. Don't see these challenges but instead see the perfect outcome of Ron accepting the kidney as if it were his own and Susie remaining a forceful advocate for donation, a woman who will go on to write of her experience and so persuade many others to do the same. This is what Susie envisioned, and this is what I see her receiving.
Monday, June 15, 2009
A Spiritual Experience at a Strip Club
My friend Armando is a DJ at strip clubs. He's 33 and has been doing this for maybe a decade. The tips are good, and you sure do learn a lot about people, he says. For months now he's been offering to escort me to a club. This past Saturday we finally went.
The Caberet is located near the docks. A heavily industrial area. The interior was dimly lit with red-sconced candles on the tables, smoky stage lights, a disco ball, and plenty of mirrors. We arrived early--around 6:30--so things were pretty slow.
Armando and I sat ring-side for a few songs, but mostly sat at a table where we could see the girls but didn't have them dancing in our faces. Armando said that, unlike the clubs he's worked at, these girls were allowed to touch the customers and even do splits inches from their eyeballs. Hard for me to imagine how these men could control themselves, song after song.
As Armando had told me previously, about 30 percent of the clientele was women. Armando also told me that 80 percent of the girls prefer women.
Besides the sensuality of these dancers, what I found fascinating about them was their athleticism. Years ago I had massaged two strippers when I worked at Mr and Ms Day Spa. I was amazed at their musculature. As these gals slowly slid down the pole, I marveled at the grace and strength in their moves.
When the girls were off-stage, they mostly wore skimpy bikins. Danielle, however, wore a large-holed, black mesh top. All of the girls had good bodies, but there certainly was variety--from a slender Asian to a large-hipped, big-busted gal who must have been 160 pounds, but her curves were firm, not flabby. A surreal environment with beautiful gals cavorting about while we sat in velvet-lined easy chairs and drank club soda and non-alcoholic pina coladas.
Danielle came over and sat on my lap, bounced up and down a bit and stroked my arm. Armando told her I was a massage therapist, so I gave her a little sample, rubbing her tight neck and shoulders.
The girl Armando and I really connected with was Kimmie. She was 20 years old and from Virginia. She'd been doing this for two years. Unlike Danielle, Kimmie seemed genuine, talking to us because she was an upbeat person and not solely to get us to have a lap dance. In fact, as Armando noted, most of the girls were just sitting around when they were off-stage, saving their energy for the high rollers who'd arrive later. But Kimmie was doing well for herself by working the crowd. Armando was counting the number of customers she led into the curtained room for a lap dance. He had her gross at $150 during the two hours we were there, and she was working until 5 the next morning.
Armando had two two-song lap dances with Kimmie ($40 each plus tip). I figured I might as well do this too, since who knows if I would ever come back to a strip club again. Kimmie led me by the hand to the curtained room. I wasn't sure what exactly a lap dance entails, so I told her that I was wearing an insulin pump and tubing for kidney dialysis. I wear my pump inside a baby sock that I tuck into my underwear. I thought I had better tell her in case it got in her way.
Kimmie couldn't believe it: She, too, is a Type I diabetic, diagnosed at age 12. She said she wore a pump when she was in school, but it caused welts at the insertion points, so she had to discontinue its use and go back to taking shots. I asked her if it was difficult to work nights. Didn't that throw her schedule off? She said she tested her blood to make sure she was OK during her shift.
Kimmie and I were both noticeably touched. It's not often that I've met a Type I (juvenille-onset rather than adult- or obesity-onset) diabetic. I've probably only knowingly met a half dozen in my entire life. Kimmie hugged me after she'd finished her dance and said that she felt I'd been guided to her. I was nearly in tears. I gave her my business card and wrote my home phone number on the back. I admonished her to take care of herself now so that she can avoid dialysis in the future. (How I wish I had met an older Type I diabetic when I was 20. Someone who might have been my guide and support system.) I told her she could call me any time to talk about diabetes, that I'd be there to offer support.
Wow, how beautiful this was! God works in mysterious ways, bringing people together who might never have been brought together otherwise.
Now Kimmie (real name Erica) may not call, and I sure can't afford to go back to the club to see her. If you were really going to do it right, a night at a strip club would start at $200 if you tipped after every dance and bought a few drinks. If you wanted more than that, a one-song lap dance is $20, a two-song $40, 15 minutes in the VIP room $160 and a half hour $300. I'm sure some people burn through hundreds of dollars a night.
But even if Kimmie doesn't call, I gave her a forceful message. Who knows, maybe because of that one brief encounter, she will watch her blood sugar level and eat right so that 30 years from now, she won't be in the same situation I'm in.
The Caberet is located near the docks. A heavily industrial area. The interior was dimly lit with red-sconced candles on the tables, smoky stage lights, a disco ball, and plenty of mirrors. We arrived early--around 6:30--so things were pretty slow.
Armando and I sat ring-side for a few songs, but mostly sat at a table where we could see the girls but didn't have them dancing in our faces. Armando said that, unlike the clubs he's worked at, these girls were allowed to touch the customers and even do splits inches from their eyeballs. Hard for me to imagine how these men could control themselves, song after song.
As Armando had told me previously, about 30 percent of the clientele was women. Armando also told me that 80 percent of the girls prefer women.
Besides the sensuality of these dancers, what I found fascinating about them was their athleticism. Years ago I had massaged two strippers when I worked at Mr and Ms Day Spa. I was amazed at their musculature. As these gals slowly slid down the pole, I marveled at the grace and strength in their moves.
When the girls were off-stage, they mostly wore skimpy bikins. Danielle, however, wore a large-holed, black mesh top. All of the girls had good bodies, but there certainly was variety--from a slender Asian to a large-hipped, big-busted gal who must have been 160 pounds, but her curves were firm, not flabby. A surreal environment with beautiful gals cavorting about while we sat in velvet-lined easy chairs and drank club soda and non-alcoholic pina coladas.
Danielle came over and sat on my lap, bounced up and down a bit and stroked my arm. Armando told her I was a massage therapist, so I gave her a little sample, rubbing her tight neck and shoulders.
The girl Armando and I really connected with was Kimmie. She was 20 years old and from Virginia. She'd been doing this for two years. Unlike Danielle, Kimmie seemed genuine, talking to us because she was an upbeat person and not solely to get us to have a lap dance. In fact, as Armando noted, most of the girls were just sitting around when they were off-stage, saving their energy for the high rollers who'd arrive later. But Kimmie was doing well for herself by working the crowd. Armando was counting the number of customers she led into the curtained room for a lap dance. He had her gross at $150 during the two hours we were there, and she was working until 5 the next morning.
Armando had two two-song lap dances with Kimmie ($40 each plus tip). I figured I might as well do this too, since who knows if I would ever come back to a strip club again. Kimmie led me by the hand to the curtained room. I wasn't sure what exactly a lap dance entails, so I told her that I was wearing an insulin pump and tubing for kidney dialysis. I wear my pump inside a baby sock that I tuck into my underwear. I thought I had better tell her in case it got in her way.
Kimmie couldn't believe it: She, too, is a Type I diabetic, diagnosed at age 12. She said she wore a pump when she was in school, but it caused welts at the insertion points, so she had to discontinue its use and go back to taking shots. I asked her if it was difficult to work nights. Didn't that throw her schedule off? She said she tested her blood to make sure she was OK during her shift.
Kimmie and I were both noticeably touched. It's not often that I've met a Type I (juvenille-onset rather than adult- or obesity-onset) diabetic. I've probably only knowingly met a half dozen in my entire life. Kimmie hugged me after she'd finished her dance and said that she felt I'd been guided to her. I was nearly in tears. I gave her my business card and wrote my home phone number on the back. I admonished her to take care of herself now so that she can avoid dialysis in the future. (How I wish I had met an older Type I diabetic when I was 20. Someone who might have been my guide and support system.) I told her she could call me any time to talk about diabetes, that I'd be there to offer support.
Wow, how beautiful this was! God works in mysterious ways, bringing people together who might never have been brought together otherwise.
Now Kimmie (real name Erica) may not call, and I sure can't afford to go back to the club to see her. If you were really going to do it right, a night at a strip club would start at $200 if you tipped after every dance and bought a few drinks. If you wanted more than that, a one-song lap dance is $20, a two-song $40, 15 minutes in the VIP room $160 and a half hour $300. I'm sure some people burn through hundreds of dollars a night.
But even if Kimmie doesn't call, I gave her a forceful message. Who knows, maybe because of that one brief encounter, she will watch her blood sugar level and eat right so that 30 years from now, she won't be in the same situation I'm in.
Saturday, June 13, 2009
Tears from Outer Space
Just a few days ago, my friend Susie donated one of her kidneys to her long-time friend's husband, Ron. Besides some severe pain caused by the pumping of gas into her system, Susie is fine. Ron, as I just heard from Susie's mom, is looking the best he's looked in 10 years. He now has some color, and his lab markers are normal. The transplant seems to have been a big success.
After I hung up the phone, I began weeping. Not just a little wet in the eyes but sobbing. I can't really say what these tears from outer space are about. Vicarious joy that someone I've never met has been given the gift of life? Is it because no one has said to me, "Heidi, once you get on that transplant list, I want to be tested as a possible donor"? Or is it that, the longer this process of getting on the waitlist drags on, the more I feel I'll be tied to a dialysis machine for the rest of my days?
I am happy for Ron, no question. It's the same sort of happiness I have often felt when I've seen people in love. I think that any love in the world makes love for others all the more possible. Though I may not be with someone, here in front of me is evidence that love and romance and passion are possible. Possible for me. So it is the same with Ron. Someone stepped up for him, so it is possible that someone will step up for me. He received a kidney, so it is possible that I may receive a kidney too.
But it is exhausting sometimes to remain positive, day after day, decade after decade, that healing and good health are coming my way. And it's a lot of energy to maintain the archetype of the happy person with health challenges.
After I hung up the phone, I began weeping. Not just a little wet in the eyes but sobbing. I can't really say what these tears from outer space are about. Vicarious joy that someone I've never met has been given the gift of life? Is it because no one has said to me, "Heidi, once you get on that transplant list, I want to be tested as a possible donor"? Or is it that, the longer this process of getting on the waitlist drags on, the more I feel I'll be tied to a dialysis machine for the rest of my days?
I am happy for Ron, no question. It's the same sort of happiness I have often felt when I've seen people in love. I think that any love in the world makes love for others all the more possible. Though I may not be with someone, here in front of me is evidence that love and romance and passion are possible. Possible for me. So it is the same with Ron. Someone stepped up for him, so it is possible that someone will step up for me. He received a kidney, so it is possible that I may receive a kidney too.
But it is exhausting sometimes to remain positive, day after day, decade after decade, that healing and good health are coming my way. And it's a lot of energy to maintain the archetype of the happy person with health challenges.
Wednesday, June 10, 2009
Still Waiting
I sent an email to Fe, the Kaiser transplant coordinator for the Bellflower facility, asking when the UCLA transplant team would make its decision. I noted that Dr. Van Herle, the UCLA cardiologist, had told Dr. Phan, my Kaiser cardiologist, a week ago that she was recommending that I be waitlisted.
Fe wrote back today, saying that Dr. Van Herle has requested the results of my angiogram from November 2006 and the results of the stress test I took last month. Fe said she requested the former two weeks from the Sunset facility, where I had the stent surgery, but so far Sunset has not responded.
This is so typical of the mixed messages from Kaiser. Dr. Phan told me Dr. Van Herle said "yes," but Fe tells me Dr. Van Herle is waiting for additional information before she can make a decision. Which is it?
So in short, I'm facing more waiting: Sunset sending the records to Fe, Fe sending the records to Van Herle, Van Herle reviewing the records and making a recommendation, the transplant team making its recommendation, and UCLA sending out a letter of affirmation or denial. I had thought I'd get an answer this week, but it doesn't look like that's going to happen.
Fe wrote back today, saying that Dr. Van Herle has requested the results of my angiogram from November 2006 and the results of the stress test I took last month. Fe said she requested the former two weeks from the Sunset facility, where I had the stent surgery, but so far Sunset has not responded.
This is so typical of the mixed messages from Kaiser. Dr. Phan told me Dr. Van Herle said "yes," but Fe tells me Dr. Van Herle is waiting for additional information before she can make a decision. Which is it?
So in short, I'm facing more waiting: Sunset sending the records to Fe, Fe sending the records to Van Herle, Van Herle reviewing the records and making a recommendation, the transplant team making its recommendation, and UCLA sending out a letter of affirmation or denial. I had thought I'd get an answer this week, but it doesn't look like that's going to happen.
Thursday, June 04, 2009
Another Move, A New Friend
I will be moving to a new abode as of the middle of this month. I found the place on one of my walks. It's the back half of a craftsman-style house about 10 blocks from where I'm currently living. It has more floor space than this place, though it too is a one-bedroom. It has a sunny extra room, though, that could be used as a dining room or an office. It has a shared back yard and an assigned parking place. That is one of three things I have long wanted in a residence: off-street parking, some dirt for a garden, and a place that will accept a dog.
That brings me to the big selling point: It's pet-friendly! As soon as I move in, I'm going to start looking for the dog of my dreams. I want the kind of dog I had as a child, one that will look at me with its big, loving eyes and pound its tail and wiggle its butt with joy when I come home. A dog that is smart and can be trained to sit up and shake its paw. A dog that is not high-strung, that only barks when it feels it needs to protect me. Not a sissy lap dog. A real dog. A mutt. Ideally, with some golden retriever in its genes to give it that beautiful honey coloring.
I told Aaron that I was much more excited about looking for a dog than looking for a man. He responded, "There are a lot more choices." A lot more good choices! About once every three or four years, I meet a man about whom I think, "Oh, hot damn! I could really go for him!" But I meet three or four dogs a week about whom I think, "Oh, what a cutie! I could sure live with you!"
That brings me to the big selling point: It's pet-friendly! As soon as I move in, I'm going to start looking for the dog of my dreams. I want the kind of dog I had as a child, one that will look at me with its big, loving eyes and pound its tail and wiggle its butt with joy when I come home. A dog that is smart and can be trained to sit up and shake its paw. A dog that is not high-strung, that only barks when it feels it needs to protect me. Not a sissy lap dog. A real dog. A mutt. Ideally, with some golden retriever in its genes to give it that beautiful honey coloring.
I told Aaron that I was much more excited about looking for a dog than looking for a man. He responded, "There are a lot more choices." A lot more good choices! About once every three or four years, I meet a man about whom I think, "Oh, hot damn! I could really go for him!" But I meet three or four dogs a week about whom I think, "Oh, what a cutie! I could sure live with you!"
UCLA Cardiologist Gives Her OK
I received some good news this week: The UCLA cardiologist is recommending to the transplant team that I be placed on the wait list. Since I had been told by the transplant surgeon and the head of the kidney-pancreas transplant team that they needed to hear from the cardiologist before making a decision, I am under the impression that they will go with her recommendation. Let's hope so.
In fact, just from a collegiality standpoint, I would think that the transplant team would have to go with her recommendation. If they said they needed to hear her opinion and then they disregard her opinion, that's a bit of a slap in her professional face. They wouldn't appreciate it if another doctor did the same to them. So I have a good feeling about this.
I had written several emails to my Kaiser nephrologist and cardiologist this week about the nuclear scan of my heart that was taken last week. In part, I asked that they ask their UCLA colleagues to stop "looking at the damn lab results and start looking at the person who is standing in front of them." I said that it is like looking at a student's failing grades and, on that basis, labeling him stupid, when all the while he's writing Nobel Prize-winning novels and findig a cure for cancer. This is analogous to my situation: The lab results paint a discouraging picture, but I feel great. I wrote that on Monday evening I walked two hours without stopping, without chest pain, without shortness of breath, whereas my walking companion, who is supposedly without health problems, was near-panting. I feel that I am in better shape than most of the women my age who don't have kidney disease. Certainly I am a better, healthier transplant candidate than someone who is 50+ pounds overweight and doesn't exercise!
In fact, just from a collegiality standpoint, I would think that the transplant team would have to go with her recommendation. If they said they needed to hear her opinion and then they disregard her opinion, that's a bit of a slap in her professional face. They wouldn't appreciate it if another doctor did the same to them. So I have a good feeling about this.
I had written several emails to my Kaiser nephrologist and cardiologist this week about the nuclear scan of my heart that was taken last week. In part, I asked that they ask their UCLA colleagues to stop "looking at the damn lab results and start looking at the person who is standing in front of them." I said that it is like looking at a student's failing grades and, on that basis, labeling him stupid, when all the while he's writing Nobel Prize-winning novels and findig a cure for cancer. This is analogous to my situation: The lab results paint a discouraging picture, but I feel great. I wrote that on Monday evening I walked two hours without stopping, without chest pain, without shortness of breath, whereas my walking companion, who is supposedly without health problems, was near-panting. I feel that I am in better shape than most of the women my age who don't have kidney disease. Certainly I am a better, healthier transplant candidate than someone who is 50+ pounds overweight and doesn't exercise!
Tuesday, May 26, 2009
Three Blind Dates
Last month marked 19 years ago that I left my husband. In those almost-two decades, I have often asked friends, acquaintances, business associates, and students to set me up with someone. In all that time, I have only had three blind dates.
One had just gotten out of rehab. We met at a coffeehouse, but he didn't have money for coffee. Besides, as coffee is a drug, he wasn't going down that path. A second one lived in someone's garage. He had not eaten for a few days, so I made him a tunafish sandwich. The third was on house arrest, though it took a half-hour phone conversation to figure that out. He kept suggesting that I come over to his place for a first date. I kept saying that, that was not my policy--to meet men at their apartments on a first date. At first he said he was on call and could not leave his house. Finally, he admitted that his bracelet would alert authorities if he did. I turned down this third gentleman, so in truth I've only had two blind dates in 19 years.
Why is this? So many people I've met over the years have told me of how their friends or co-workers introduced them to their future boyfriend, girlfriend, lover, or spouse. Don't my friends know any interesting, eligible men? Do they not believe me when I tell them I'd sure appreciate a recommendation?
And perhaps a more interesting question: Why did they send me these men? Do I look like a woman who wants a "project"? Do I present myself as a woman who wants to carry a man? That's sure not the way I see myself.
Or were they just having a good joke at my expense? I mean, in retrospect, there is certainly a laugh or two to be had here, but then perhaps they could have followed up with a viable option.
It's a mystery.
One had just gotten out of rehab. We met at a coffeehouse, but he didn't have money for coffee. Besides, as coffee is a drug, he wasn't going down that path. A second one lived in someone's garage. He had not eaten for a few days, so I made him a tunafish sandwich. The third was on house arrest, though it took a half-hour phone conversation to figure that out. He kept suggesting that I come over to his place for a first date. I kept saying that, that was not my policy--to meet men at their apartments on a first date. At first he said he was on call and could not leave his house. Finally, he admitted that his bracelet would alert authorities if he did. I turned down this third gentleman, so in truth I've only had two blind dates in 19 years.
Why is this? So many people I've met over the years have told me of how their friends or co-workers introduced them to their future boyfriend, girlfriend, lover, or spouse. Don't my friends know any interesting, eligible men? Do they not believe me when I tell them I'd sure appreciate a recommendation?
And perhaps a more interesting question: Why did they send me these men? Do I look like a woman who wants a "project"? Do I present myself as a woman who wants to carry a man? That's sure not the way I see myself.
Or were they just having a good joke at my expense? I mean, in retrospect, there is certainly a laugh or two to be had here, but then perhaps they could have followed up with a viable option.
It's a mystery.
Friday, May 22, 2009
Chick Cabin Hug
This photo says chick cabin like no other (see May 17 post for more on chick cabin). Here I was among these wonderful women. What better place to break down and cry. And here are Lisa, Loriann, and Kim, giving me all kinds of love. Wow!
Wednesday, May 20, 2009
Goodbye, Cal State
On Monday the journalism department gave me a send-off party. After years of slights and shoddy treatment, the department rallied. Interesting how that is, isn't it! I guess people figure, She's out the door. Why not be nice?
And the send-off was very sweet. About 15 people stopped by. They were all very kind. They gave me a $100 Visa card, orchids, balloons, and a card. Four students also gave me heartfelt cards.
Here is the thank-you email I sent out just moments ago:
Thanks so much to everyone who attended my send-off party. Thanks, too, to all who contributed to my day at the spa--what I plan to do with my Visa card. And the orchids are lovely, still looking good atop my kitchen table. As always, thanks to Teri and Carolyn, the force behind so much kindness that issues from the department.
When I first learned that something was being planned for me, I felt my eyes get a little watery. You can't imagine how challenging the last decade has been, and especially the past six months. Acts of kindness--often from unexpected quarters--have done so much to boost my spirits--a neighbor helping me lift some boxes, my son's friends stopping by to say hello, a smile from a passing stranger.
Perhaps you already know this, and practice this on a daily basis, but perhaps, too, it bears iteration: Every day each one of you touches the lives of many. You choose whether your interactions will be ego- or other-centered. You chose whether you will treat each individual as a valuable human being, someone richly deserving of respect and consideration, or whether you will only treat others as vehicles to further your own goals. Ironically, it is when you choose the former path that beautiful things begin to happen, not only for the person to whom you show kindness, but to your own self as well.
The ancient Greeks spoke of a golden light that dwells within every soul and how it is each individual's moral duty to allow that light to shine forth to the world. If one has artistic talent, for example, he would be morally bankrupt if he instead became an accountant--for the money--and never picked up a paintbrush again. And someone who has a knack for numbers would be equally culpible should he waste years engaged in so-so art projects when he could be assisting hundreds of people with their financial woes. So, too, the best teachers have a golden light that they bring forth to their students; they reveal their excellence to the world through their work, and their students see this in their passion for their subject and their concern for their students' advancement and well being.
There is a golden light of kindness as well, a deep knowledge that everyone is a valuable human being deserving of the very best that life can give. I felt this golden light at my send-off party. For this I am grateful.
May this find you in good health and in good spirits,
Heidi
Sunday, May 17, 2009
Earthquake--And I'm Alone and Hooked up to a Dialysis Machine!
A 5.0 earthquake just rattled my apartment. I could hear things falling and breaking in the kitchen and living room, but as I'm on a 12-foot leash, I can't investigate. In years gone by when a temblor struck, I would brace myself in a doorless door frame or scoot under my bed. But the only doors within 12 feet of the dialysis machine have doors, and the underside of my bed is loaded to the hilt with dialysis supplies.
So all I could do was sit still. When there's nothing that can be done, why get upset? I realize I'm in an extremely vulnerable situation, being hooked up for 10 hours every night, when it comes to quakes, fires, and any criminal who might enter my living quarters.
This evening's experience reminded me of a bicycle accident I had over a decade ago. I was making a left turn, and a car came racing around a corner into my path. The thought went through my head, "I'm going to hit that car." This acceptance brought with it a great sense of peace and surrender. I completely relaxed, which doubtless saved my life.
I felt that same kind of acceptance just now. In such a situation, I know I have only two not-such-great options--remain hooked up and vulnerable to injury or quickly disconnect in a dusty environment that would most likely cause a site infection or internal contamination. Since nothing big was falling, I simply took the experience calmly and waited for it to pass.
So all I could do was sit still. When there's nothing that can be done, why get upset? I realize I'm in an extremely vulnerable situation, being hooked up for 10 hours every night, when it comes to quakes, fires, and any criminal who might enter my living quarters.
This evening's experience reminded me of a bicycle accident I had over a decade ago. I was making a left turn, and a car came racing around a corner into my path. The thought went through my head, "I'm going to hit that car." This acceptance brought with it a great sense of peace and surrender. I completely relaxed, which doubtless saved my life.
I felt that same kind of acceptance just now. In such a situation, I know I have only two not-such-great options--remain hooked up and vulnerable to injury or quickly disconnect in a dusty environment that would most likely cause a site infection or internal contamination. Since nothing big was falling, I simply took the experience calmly and waited for it to pass.
11th Annual Chick Cabin Weekend
Last weekend, as every third weekend of May for the past 11 years, was chick cabin weekend. An annual event in Green Valley Lake, near Big Bear, at the cabin owned by Heather's mom. Mostly it's women who knew Heather in high school or even since early elementary school. But thrown into the mix are a few gals like me who know Heather via different routes. There is a core group--Heather, the two Lisas, Dre, Kim, Debbie, and Diane. This year, Lori Ann, a firefighter in Albequeque; Kristin, whom I met as I was leaving; and Susie, who has been so encouraging in regards to me being kidney-wait listed, were also present.
Though I rarely see or talk with these gals any time except chick cabin, I feel so close to them. They are the only group of female friends I have ever known. In fact, I really haven't had too many female friends over the years, so the CCW gals are that much more special.
Last year--the big 10th annual extravaganza--I couldn't go. I was attempting a 30-day, all-liquid fast and cleanse to bring my body into health and avert dialysis. That didn't last, as I gained seven pounds of water weight in one day and became ill. Besides, my heart was taxed at sea level. I was concerned I would be unable to breathe at the cabin's 5,000-foot elevation.
So attending this year was a big deal for me. I left Long Beach around 2 on Friday afternoon. This was to be my first night away from home since beginning dialysis on Feb. 2. This was also my first experience with CAPD (continuous ambulatory peritoneal dialysis), in which I performed dialysis every six to eight hours. This didn't allow for much sleep, plus the dialysis bags were cold, so there was a bit of cramping during the fill. But it all went fine nonetheless.
About eight years ago, the Lisa who had been a professional dancer was pregnant and asked Heather and me to photograph her nude on the boulders that are scattered about this forested area. That was quite lovely, her breasts and big belly echoed in the roundness of the rocks. This began a tradition of nude photography. Some years it's only Lisa and me who photograph each other. Other years Heather joins in and perhaps Rachel, if she's around.
This year it was important for me to be photographed. Following the placement of the catheter, it took weeks for me to feel comfortable about looking in the mirror. I felt that stipping down would help my body image.
Lisa had brought scarves and a loose shirt for partial covering, but in some photos I opted to take everything off, everything, of course, but the tubing, dressing, transfer set, PD belt, and insulin pump! I guess it's impossible for me to get completely nude!
These photo sessions are so much fun! I enjoy being the photographer as much as I enjoy being the model. Of course, as Lisa is a dancer, she is adept at using her body to create sculpture-like poses.
Shown here are only a few of the tamest shots, as I'm not interested in having my breasts, my sex, and my behind for all the world to see.
Friday, May 15, 2009
Tomorrow You Will be Executed--Whoops!
Yesterday I received this curt, poorly proofed letter from UCLA Transplant Services:
"The patient was seen in Kidney/Pancreas Evaluation Clinic on 4/16/09. Patient current status is: Inactive. The patient is not a candidate at this time and will not be placed on the UNOS Wait List. Patient was seen as a consult only. Patient was seen as a consultation only. The patient is not a candidate for kidney & pancreas transplantation at this time due to inoperative, 3-vessel coronary artery disease. Pleasae see the dictation for detail. Other: Patient was hypertensive at the time of evaluation(170/100 bpm). Please follow-up with your physician."
I immediately got on the phone. I wasn't crying; I was angry. I didn't raise my voice, and I didn't use foul or offensive language. I was firm and direct, not accepting any PC, bullshit answers.
I had seen the UCLA cardiologist last Friday, and she had ordered another test, which I have scheduled for May 26 and 27. "I have a new heart," I told her, as I have told at least five other doctors. "Please don't judge me on the basis of an angiogram done years before I started dialysis." I also asked her not to judge me on the basis of my clinical blood pressure, as my twice-daily, at-home readings are in the neighborhood of 100/60. She said that patients are often nervous about these visits, and consequently, their BP shoots up. Nervous? My God, who wouldn't be! These people are deciding whether I'll live or die!
First I talked with the in-take nurse. How could UCLA send out a letter like this when I had been told by the cardiologist that her decision was dependent upon the results of a test I have not yet taken? She couldn't answer this question and went off to find someone who could. This meant quite a long time on hold. When she got back, I asked to speak with the cardiologist. Of course, one can rarely speak directly to a doctor! Oh, my God, we couldn't have patients talking directly to doctors outside of office visits! The whole system of elitism might come tumbling down. The nurse said the head nurse, Melissa Forest, would review my records and call me.
Melissa said the letter had been sent out prematurely. It had been based on the transplant surgeon and the director of the transplant program's recommendation--even though these two had referred me to the cardiologist. They had told me they would base their decision on the cardiologist's recommendation. Why, I demanded, had this letter been sent out? "Is this part of the psychological testing?" I asked. "Do you mess with patients and see how they handle it?" That question shocked her, and she didn't answer it. I persisted: "Because if messing with patients is part of the workup, then I've passed because I'm not crying and I'm not taking this sitting down."
I explained how I was feeling: "I'm on Death Row. I get a letter saying that my execution is tomorrow. 'But my lawyer has my case in appeal,' I say. 'How can you go ahead with the execution when my case is in appeal?'" She said she understood. I countered with: "So you've been a transplant patient?" She didn't answer. I asked again. "No, I haven't," she said. "Well, then you don't understand," I said.
I said that I am just starting out with UCLA, and if this lack of attention to detail is present at the onset, I'm concerned that such carelessness may pervade the entire process. I am concerned about the carelessness that seems to have gone into sending out this letter, without concern for accuracy or the patient's feelings. I said I worked as an editor and alluded to the carelessness with the language of the letter. Though I didn't specifically cite the errors, here they are--"pleasae," "follow-up" (no hyphen when used as a verb), two cases of redundancy, and the switch from third to second person. "If there is carelessness in the little things, it makes me wonder if there will be carelessness with the big things." I repeated this to help it sink in. Yes, the big things--making sure the organ is a good match and making sure the surgery is successful.
Melissa apologized, but I wanted to know what she was going to do to correct this problem. I asked if this matter would be taken up at a staff meeting. Perhaps people should think before sending out such letters. She assured me she would bring it up. Who knows if that will actually happen.
Now, I must attend to some important business--getting a match and burning the letter.
"The patient was seen in Kidney/Pancreas Evaluation Clinic on 4/16/09. Patient current status is: Inactive. The patient is not a candidate at this time and will not be placed on the UNOS Wait List. Patient was seen as a consult only. Patient was seen as a consultation only. The patient is not a candidate for kidney & pancreas transplantation at this time due to inoperative, 3-vessel coronary artery disease. Pleasae see the dictation for detail. Other: Patient was hypertensive at the time of evaluation(170/100 bpm). Please follow-up with your physician."
I immediately got on the phone. I wasn't crying; I was angry. I didn't raise my voice, and I didn't use foul or offensive language. I was firm and direct, not accepting any PC, bullshit answers.
I had seen the UCLA cardiologist last Friday, and she had ordered another test, which I have scheduled for May 26 and 27. "I have a new heart," I told her, as I have told at least five other doctors. "Please don't judge me on the basis of an angiogram done years before I started dialysis." I also asked her not to judge me on the basis of my clinical blood pressure, as my twice-daily, at-home readings are in the neighborhood of 100/60. She said that patients are often nervous about these visits, and consequently, their BP shoots up. Nervous? My God, who wouldn't be! These people are deciding whether I'll live or die!
First I talked with the in-take nurse. How could UCLA send out a letter like this when I had been told by the cardiologist that her decision was dependent upon the results of a test I have not yet taken? She couldn't answer this question and went off to find someone who could. This meant quite a long time on hold. When she got back, I asked to speak with the cardiologist. Of course, one can rarely speak directly to a doctor! Oh, my God, we couldn't have patients talking directly to doctors outside of office visits! The whole system of elitism might come tumbling down. The nurse said the head nurse, Melissa Forest, would review my records and call me.
Melissa said the letter had been sent out prematurely. It had been based on the transplant surgeon and the director of the transplant program's recommendation--even though these two had referred me to the cardiologist. They had told me they would base their decision on the cardiologist's recommendation. Why, I demanded, had this letter been sent out? "Is this part of the psychological testing?" I asked. "Do you mess with patients and see how they handle it?" That question shocked her, and she didn't answer it. I persisted: "Because if messing with patients is part of the workup, then I've passed because I'm not crying and I'm not taking this sitting down."
I explained how I was feeling: "I'm on Death Row. I get a letter saying that my execution is tomorrow. 'But my lawyer has my case in appeal,' I say. 'How can you go ahead with the execution when my case is in appeal?'" She said she understood. I countered with: "So you've been a transplant patient?" She didn't answer. I asked again. "No, I haven't," she said. "Well, then you don't understand," I said.
I said that I am just starting out with UCLA, and if this lack of attention to detail is present at the onset, I'm concerned that such carelessness may pervade the entire process. I am concerned about the carelessness that seems to have gone into sending out this letter, without concern for accuracy or the patient's feelings. I said I worked as an editor and alluded to the carelessness with the language of the letter. Though I didn't specifically cite the errors, here they are--"pleasae," "follow-up" (no hyphen when used as a verb), two cases of redundancy, and the switch from third to second person. "If there is carelessness in the little things, it makes me wonder if there will be carelessness with the big things." I repeated this to help it sink in. Yes, the big things--making sure the organ is a good match and making sure the surgery is successful.
Melissa apologized, but I wanted to know what she was going to do to correct this problem. I asked if this matter would be taken up at a staff meeting. Perhaps people should think before sending out such letters. She assured me she would bring it up. Who knows if that will actually happen.
Now, I must attend to some important business--getting a match and burning the letter.
Sunday, May 10, 2009
Yet Another Step in the Kidney Appeals Process
I met with the UCLA cardiologist on Friday. She is charged with determining my suitability as a transplant candidate. I was hoping and praying for a decision, but that has now been delayed. She wants me to undergo another stress test to assess my heart function. This is probably the best news I could have expected at this point, as she did not deny my request and she did not insist on an angiogram, which uses dye that is harmful to the kidneys. So it's yet another step in this long, involved, emotionally exhausting process.
I greatly appreciate all those who have been praying on my behalf, and I ask that you continue to do so. I know that prayer is very powerful, and it touches me deeply to know that so many people have my best interests in mind and in heart.
I greatly appreciate all those who have been praying on my behalf, and I ask that you continue to do so. I know that prayer is very powerful, and it touches me deeply to know that so many people have my best interests in mind and in heart.
Saturday, May 02, 2009
The One Word That Says it All
"Proswayed," a female student in one of my classes wrote. When I pointed this mistake out to her, she was befuddled. "It's spelled 'persuade,'" I said. "Oh," she replied.
This one word sums up much of what is wrong with education these days: carelessness, inattention, lack of pride in a job well done, unconcern about one's own language, rushing to finish one project in order to hurry through another.
The flip side is that my fellow educators seem unconcerned about the deterioration of standards. Over the years, I have seen such a steady decline, and this has been disheartening for me. I wonder how sloppy we will eventually become, how much further into the mud we will sink.
And that's one reason why I am glad to be leaving Cal State. Professors who don't care and students who care even less. I will certainly not miss either one.
This one word sums up much of what is wrong with education these days: carelessness, inattention, lack of pride in a job well done, unconcern about one's own language, rushing to finish one project in order to hurry through another.
The flip side is that my fellow educators seem unconcerned about the deterioration of standards. Over the years, I have seen such a steady decline, and this has been disheartening for me. I wonder how sloppy we will eventually become, how much further into the mud we will sink.
And that's one reason why I am glad to be leaving Cal State. Professors who don't care and students who care even less. I will certainly not miss either one.
The Mikes in my Life
A few days ago, it hit me that Mikes have figured prominently in my life. Mike Riek was the love of my life. Mike Cincola was my favorite massage client. (We had such a smashing repoire that his wife was jealous, and Mike abruptly ended our weekly massages with a $700 tip.) Mike Phan is my compassionate cardiologist, and Mike Butman is my dear nephrologist. (Perhaps doctors don't mean that much to you, dear reader, but for someone in my position, having doctors I trust and can relate to means the world.) And most importantly, Archangel Michael.
When this notion of the noteworthy Mikes entered my head, I wondered if this has been the archangel's way of telling me he's watching over me. Sending me Mikes to take care of me on Earth. Certainly Mike Cincola took care of me financially, and of course it did me a whole bunch of good to see a man once a week who I really liked and who really liked to see me. And I've written previously about how Drs. Phan and Butman are rooting for me, doing their damnest to get me on the transplant list, taking care of me physically and medically, as well as boosting my spirits.
But what about Mike Riek? In so many ways, Mike was a huge detriment. Psychologically and mentally abusive, neglectful, self-centered, self-absorbed, filled with rage, self-deprecating, self-destructive. But he certainly took care of me sexually for four years. So, sure, Mike too could have functioned as the archangel's emissary.
And now one more Mike has been added to the mix--Mike Leon, Aaron's artist friend whom I've commissioned to render the archangel as I saw him on that April day in 2000. Mike said he's long been interested in Archangel Michael. I hope to sit down with Mike soon and work on a sketch of that experience. Something like an artist who sketches a suspect from a witness's memory. A little more muscle. Hair a bit more tussled. Blinding light of his minions to either side and to infinity in back of him. I can see him so clearly, but I want so much to have the likeness rendered so that I can gaze upon it many times a day.
When this notion of the noteworthy Mikes entered my head, I wondered if this has been the archangel's way of telling me he's watching over me. Sending me Mikes to take care of me on Earth. Certainly Mike Cincola took care of me financially, and of course it did me a whole bunch of good to see a man once a week who I really liked and who really liked to see me. And I've written previously about how Drs. Phan and Butman are rooting for me, doing their damnest to get me on the transplant list, taking care of me physically and medically, as well as boosting my spirits.
But what about Mike Riek? In so many ways, Mike was a huge detriment. Psychologically and mentally abusive, neglectful, self-centered, self-absorbed, filled with rage, self-deprecating, self-destructive. But he certainly took care of me sexually for four years. So, sure, Mike too could have functioned as the archangel's emissary.
And now one more Mike has been added to the mix--Mike Leon, Aaron's artist friend whom I've commissioned to render the archangel as I saw him on that April day in 2000. Mike said he's long been interested in Archangel Michael. I hope to sit down with Mike soon and work on a sketch of that experience. Something like an artist who sketches a suspect from a witness's memory. A little more muscle. Hair a bit more tussled. Blinding light of his minions to either side and to infinity in back of him. I can see him so clearly, but I want so much to have the likeness rendered so that I can gaze upon it many times a day.
Good Energy for May 8
Round three in the transplant fight: a May 8 meeting with a UCLA cardiologist. The director of the program and the surgeon, with whom I met on April 16, will bow to her decision regarding my suitability as a transplant candidate.
The possible outcomes of this meeting:
* overturning the director and surgeon's decision to keep me off the pancreas list
* giving me her blessing for placement on the kidney-only list
* requiring me to undergo more tests before she can make a decision
* refusing to put me on the kidney list
The first is highly unlikely. The second is also a real long shot, according to Dr. Butman, who told me yesterday that patients who had no history of heart disease are often required to undergo an angiogram, so someone like me surely will have to do so.
The last outcome is the one that haunts me. I try to stay focused on 2 and 3, but 4 keeps creeping in.
If she hits me with 4, I will offer her this analogy: The doctors' hesitancy to put me on the list because of an angiogram done in 2006 seems analogous to a 35-year-old who applies for a job and is told he is not a candidate because he was arrested for shoplifting when he was in junior high. He tells HR that he's radically changed since then and is now an upstanding citizen--and he has church membership and community-service awards to prove it.
This seems to be the situation I'm facing. Why are the UCLA docs focused on my "arrest record" rather than on the miraculous transformation my heart has made since the onset of dialysis? (For the past month, I've been lifting weights and walking two to three miles four days a week.) Am I missing something? Are there flaws in my analogy? What more can be done to get them to see the "upstanding citizen" and not the "troubled youth"?
Literary devices worked wonders for Socrates and Jesus. Maybe this analogy will do the trick for me.
The possible outcomes of this meeting:
* overturning the director and surgeon's decision to keep me off the pancreas list
* giving me her blessing for placement on the kidney-only list
* requiring me to undergo more tests before she can make a decision
* refusing to put me on the kidney list
The first is highly unlikely. The second is also a real long shot, according to Dr. Butman, who told me yesterday that patients who had no history of heart disease are often required to undergo an angiogram, so someone like me surely will have to do so.
The last outcome is the one that haunts me. I try to stay focused on 2 and 3, but 4 keeps creeping in.
If she hits me with 4, I will offer her this analogy: The doctors' hesitancy to put me on the list because of an angiogram done in 2006 seems analogous to a 35-year-old who applies for a job and is told he is not a candidate because he was arrested for shoplifting when he was in junior high. He tells HR that he's radically changed since then and is now an upstanding citizen--and he has church membership and community-service awards to prove it.
This seems to be the situation I'm facing. Why are the UCLA docs focused on my "arrest record" rather than on the miraculous transformation my heart has made since the onset of dialysis? (For the past month, I've been lifting weights and walking two to three miles four days a week.) Am I missing something? Are there flaws in my analogy? What more can be done to get them to see the "upstanding citizen" and not the "troubled youth"?
Literary devices worked wonders for Socrates and Jesus. Maybe this analogy will do the trick for me.
Monday, April 27, 2009
Culling the Herd?
I've been reading about the so-called "swine" flu that has hit Mexico, the U.S. and now Spain, New Zealand, and a few more places. As reported in the press, the responsible virus has components from three continents and from three types of animals--human, bird, and pig. To my thinking, it seems highly unlikely that something like this would develop on its own, without the assistance of government and pharmaceutical-company labs.
Now before you stop reading, consider that not too long ago, Baxter International had shipped out flu vaccine containing avain-flu virus. A simple matter of sloppy work as is often seen in food processing when components used in one food product inadvertently contaminate a batch of some other food product? That might be a plausible explanation, if only that a pharmaceutical company is not supposed to be in the business of manufacturing pandemics.
The Baxter story was not covered in this country, though it was widely reported in Europe and Canada. Once again, the U.S. is in a news bubble.
And guess what, folks--Baxter is working on a vaccine for this latest "swine" flu. Oh, great, the same company that tried to start a pandemic less than a year ago by manufacturing tainted vaccine now has the contract to make a second go of it.
Though this story is disconcerting for anyone, it is especially so for me, as Baxter is also the manufacturer of my dialysis supplies. Everything from the solution to the tubing. What I've wondered since discovering all this: Is Baxter "culling the herd" by adding something toxic to the dialysis solution, something that wouldn't kill a patient outright--she needs to be kept alive for some time to generate income for the pharmaceutical giant--but would slowly work against the body over time?
This whole notion of culling the herd has been around for quite some time. My first exposure to it was about 20 years ago. On one level, it makes sense. The world has way too many people, and a whole lot more are coming. Our resources are finite; no new timber, oil, or land to grow crops are entering our world from some other planet. What we've got here and now is all there is. The only solution is to cull the herd. Of course, the more benign approach would be to prevent births in the first place, take care of the problem on the front end. This could be done through tax disincentives for having more than one or two children or incentives for voluntary sterilization. I mean, seriously, why are the tax laws still designed to reward big families? That might have been a fine idea 150 years ago when this was a young country and lots of kids were needed to do farm chores. But that's not the nation we are currently living in.
The really spooky thing about Baxter is that, every time I would call the company to place an order or check on the status of an order or get tech support, this awful, sappy music would play while I was on hold. Always the same annoying song. I complained several times, but nothing happened. Then I started telling the rep that if I were shooting a horror film about forced euthenesia, I would use this song as background music. "It's music to kill by" was the message I left on a supervisor's answer machine. That must have struck a chord with Baxter because about a week ago--before the outbreak in Mexico--I was informed the company is changing the music.
Now before you stop reading, consider that not too long ago, Baxter International had shipped out flu vaccine containing avain-flu virus. A simple matter of sloppy work as is often seen in food processing when components used in one food product inadvertently contaminate a batch of some other food product? That might be a plausible explanation, if only that a pharmaceutical company is not supposed to be in the business of manufacturing pandemics.
The Baxter story was not covered in this country, though it was widely reported in Europe and Canada. Once again, the U.S. is in a news bubble.
And guess what, folks--Baxter is working on a vaccine for this latest "swine" flu. Oh, great, the same company that tried to start a pandemic less than a year ago by manufacturing tainted vaccine now has the contract to make a second go of it.
Though this story is disconcerting for anyone, it is especially so for me, as Baxter is also the manufacturer of my dialysis supplies. Everything from the solution to the tubing. What I've wondered since discovering all this: Is Baxter "culling the herd" by adding something toxic to the dialysis solution, something that wouldn't kill a patient outright--she needs to be kept alive for some time to generate income for the pharmaceutical giant--but would slowly work against the body over time?
This whole notion of culling the herd has been around for quite some time. My first exposure to it was about 20 years ago. On one level, it makes sense. The world has way too many people, and a whole lot more are coming. Our resources are finite; no new timber, oil, or land to grow crops are entering our world from some other planet. What we've got here and now is all there is. The only solution is to cull the herd. Of course, the more benign approach would be to prevent births in the first place, take care of the problem on the front end. This could be done through tax disincentives for having more than one or two children or incentives for voluntary sterilization. I mean, seriously, why are the tax laws still designed to reward big families? That might have been a fine idea 150 years ago when this was a young country and lots of kids were needed to do farm chores. But that's not the nation we are currently living in.
The really spooky thing about Baxter is that, every time I would call the company to place an order or check on the status of an order or get tech support, this awful, sappy music would play while I was on hold. Always the same annoying song. I complained several times, but nothing happened. Then I started telling the rep that if I were shooting a horror film about forced euthenesia, I would use this song as background music. "It's music to kill by" was the message I left on a supervisor's answer machine. That must have struck a chord with Baxter because about a week ago--before the outbreak in Mexico--I was informed the company is changing the music.
Sunday, April 19, 2009
Wow! Some of These People Look Like Stoners
Last night I attended my first ever laser light show. It is rare when an experience exceeds one's expectations. This was certainly one of those times.
This was Aaron's third Pink Floyd Laser Light Show, but even he said that this year's was so much better than anything he'd ever experienced previously.
Even before we entered the packed auditorium, I was giggling as if I were high. For the record, I was not, though I had been in close proximity to someone who had smoked. (No names will be divulged.) Aaron said that was great that all I needed to do was to watch someone else get high in order to get me going. Yes, it doesn't take much.
A lot of long hairs and spacey chicks. "Wow!" I remarked at my fellow audience members. "Some of these people look like stoners!" Aaron agreed that if you were looking for stoners, this would be the venue at which to find them.
I was awestruck throughout the two-hour performance. With the special glasses, light beams were pulsating, throbbing, undulating, and ricocheting across the stage and over our heads. Images from the classic science fiction film "Metropolis" and from "The Wall." One segment at the beginning of the production featured a black-and-white film of a man in a bed with wheels that just started moving of its own accord, down a hospital hallway and onto a runway. The man looked like a young version of Mike. So interesting because he died three years ago on April 16.
Watching all these colored images and light beams and even tunnels of light surround me, I was in an altered state. I was so spacey, but in a very good sense. I wondered if this is some of what I was oblivious to as a young adult, as I missed out on illicit drug use, rock concerts, and mindless sex when they were easy to come by and with few consequences. My youth was spent on other things: listening to "The Blue Danube" over and over again, collecting statuary pigs, weaving potholders, hanging out with my dog, writing poetry, hybridizing houseplants, gardening, reading about ancient civilizations and the occult, and entering trance-like states while gazing into the woods or the meadow. In fact, I attended my first ever rock concert about two years ago--The Who at the Long Beach Auditorium.
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