Recently I read "Alone," the tale of Gerard d'Aboville, the Frenchman who at 46 years old rowed across the Pacific Ocean from Choshi, Japan, to the mouth of the Columbia River. Hard to believe, but he did it.
Throughout the book I was impressed in the many ways in which his struggle parallels mine, even though the venues are quite dissimilar.
Here is an insightful passage from his book:
"My motor is not so much my muscles, but my stubbornness, my tenacity, my loathing of discouragement, which I have to fight day after day, hour after hour, stoke after stroke, as each arc of the oars grows more difficult than the last. I am a resistance fighter in a war I invented for myself. The enemy is me, with all my physical shortcomings, my temptation to give up. That temptation, by the way, does not consist of sending up my distress signal and throwing in the towel, as one might think. It is the thousand and one little daily temptations that lie in wait for us all: to get out of bed five minutes later than usual, to stop one minute before the bell rings signaling the end of the working day; to pull a trifle less vigorously on the oar next time; even to stop shaving. These are the kinds of minor abandonments, the castings off just a little here and there, which together, ineluctably lead to the ultimate surrender. And it is these same minor, ridiculous battles, these repetitive, fastidious, inglorious battles that, if I persist, will eventually lead me to victory."
Every time I go into the PD clinic and see other dialysis patients, I come away with the message: Don't succumb to minor abandonments. The temptation to ignore healthful eating habits and just eat whatever I damn well please. The temptation to stop caring about my looks, to shun the little bit of makeup I do wear, to start donning sweat pants. My friend Heather recently quoted a comedian who said that nothing signals giving up like sweatpants. And yet sweatpants is what all the PD clinic staff recommend to hide the four-pound pouch caused by the dialysis solution that is left in the peritoneum membrane between exchanges.
All I am exposed to are dialysis patients who, in so many little abandonments, have given up. They may not see it that way, but it's clear to me. I think of the insulin-dependent diabetic who has received two kidney transplants and continues to get toes amputated yet eats Kentucky Fried Chicken, pepperoni pizza, and sheet cake with gobs of frosting. Or the woman who must weigh 350 pounds and so is confined to a wheelchair. Actually, all of the dialysis patients who attended the two support group meetings I have attended have been overweight or obese. And my friend Bob, whose father is on hemodialysis but is actually extremely thin, reports the same: patients bringing cheesecake and candy and buckets of fried chicken into the dialysis center.
I am not tempted by food, and I have enough self-worth to want to look my best, so I don't see this being the route I follow. But I must be on guard against any thought, word, or action that undermines my ability to be in absolutely top form.
By eating an organic, healthful diet; by wearing a gray wool suit or a coordinated skirt and blouse; and by projecting an upbeat look rather than the dejected, worn-out, beaten-up looks I see so often in other dialysis patients, I show to the world that I am the person who is a fantastic candidate for a kidney transplant. And if, like Gerard, I persist, I will eventually have my victory.
Mystical experiences, yearnings, politics, little dramas, poetry, kidney dialysis, insulin-dependent diabetes, and opportunities for gratitude.
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About Me
- Heidi's heart
- Southern California, United States
- Perhaps my friend Mark summed me up best when he called me "a mystical grammarian." I am quite a mix--otherworldly, ethereal and in touch with "the beyond," yet prone to being very precise and logical, when need be. Romantic in the big-canvas meaning of the word, I see the world as an adventure, as a love poem, as a realm of beauty and wonder.
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