Monday, September 14, 2009

Hooray! At Last, Some Movement in the Transplant Process

After being dead in the water for at least five months, I have finally seen some movement in the transplant process. I met today with Dr. Michael Lee, the new cardiologist at UCLA. He has replaced Dr. Van Herle, who is the cardiologist who was initially assigned to my case but who has left UCLA.

After an intro that made me think he was going to say "no way" to a transplant, no matter what I did, Dr. Lee said that, if I do the following, he will recommend to the transplant team that I be put on the wait list:
1) get a stent in the artery on my lateral side,
2) have an ultrasound and a fractional flow reserve test done of my right artery and perhaps get a stent put in there or have bypass surgery for that artery, and
3) get him the results of my most recent stress test.

A month ago I was averse to having another stent because 1) the first stent, placed in November 2006, did nothing to improve my condition, and most importantly, 2) the dye used for an angiogram and for stent surgery is damaging to the kidneys. Now I just want to get on that list. I am hoping and praying that my kidneys will be protected during these procedures, as I want to stay with peritoneal dialysis and not have to switch to hemodialyis.

So, here's the game plan now:
1) Schedule stent surgery.
2) Perhaps go back for the assessments of the right artery if Dr. Phan, my Kaiser cardiologist, feels that it would be better for my kidneys if the procedures were done on two separate days.
3) Depending on the results of the right-artery tests, a) do nothing because the right artery is just fine, b) get a stent, or c) have bypass surgery.
4) See Dr. Lee again and get his OK for the wait list.
5) Perhaps see the transplant surgeon again.
6) Wait for the transplant team's approval and for the letter of approval that puts me on the wait list.
7) Work with a live donor--the best scenario. Or wait for a deceased donor.

At my next meeting with Dr. Lee, I plan to ask him if he could recommend me for the kidney-pancreas wait list. That would be great because 1) my wait time for a deceased donor would drop from 7-10 years for a kidney-only transplant to 2-3 years for a kidney-pancreas transplant. This is because more people need just the kidney than need both organs, so when a compatible donor comes along, the patient who could use both organs is given the organs rather than wasting the pancreas and only using the kidney. 2) I would no longer have to wear an insulin pump or take insulin injections--the answer to my decades-old prayer!

2 comments:

Alexi Holford said...

hooray!

Heidi's heart said...

Well, it's movement. It's still a long shot, according to my nephrologist. The transplant team could still deny me.

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About Me

Southern California, United States
Perhaps my friend Mark summed me up best when he called me "a mystical grammarian." I am quite a mix--otherworldly, ethereal and in touch with "the beyond," yet prone to being very precise and logical, when need be. Romantic in the big-canvas meaning of the word, I see the world as an adventure, as a love poem, as a realm of beauty and wonder.

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