Several developments in the wait list saga:
* Met with my Kaiser cardiologist, Dr. Phan, who said that my UCLA cardiologist, Dr. Van Herle, is leaving UCLA. I have been assigned a new cardiologist, Dr. Michael Lee--yes, another Michael, which I am taking as a good sign. I have called about an appointment with Dr. Lee, but have not yet secured one.
* I am holding off on the angiogram until after I meet with Dr. Lee. To recap, the angiogram uses a dye that is damaging to the kidneys. Furthermore, patients who are asymptomatic (no chest pain) fare worse with stent surgery (the end result of an angiogram) than without. Also, I have no guarantee that I'll be on the wait list if I do the stent surgery, so this is potentially a lose-lose-lose situation for me.
* Dr. Lee told Dr. Phan that he is willing to begin with a MUGA (Multiple Gated Acquistion) test, which will measure my heart's pumping ability or EF. This should clear up two inconsistent sets of data, one from the nuclear scan done about two months ago that indicated my EF was around 30 and the other from an echocardiogram, which showed an EF of 50, which is the low side of normal.
Months ago I had made plans to go to Canada, thinking that for sure the wait list would be decided by August. Alas, such is not the case. Most likely I will have to wait until after my return on Sept. 9 to undergo the MUGA and see Dr. Lee, so I may not have much news for a while.
Please see my left ventricle pumping like crazy, supplying my heart with all the blood and oxygen it needs to do its job perfectly, smoothly, and effortlessly.
Mystical experiences, yearnings, politics, little dramas, poetry, kidney dialysis, insulin-dependent diabetes, and opportunities for gratitude.
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About Me
- Heidi's heart
- Southern California, United States
- Perhaps my friend Mark summed me up best when he called me "a mystical grammarian." I am quite a mix--otherworldly, ethereal and in touch with "the beyond," yet prone to being very precise and logical, when need be. Romantic in the big-canvas meaning of the word, I see the world as an adventure, as a love poem, as a realm of beauty and wonder.
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