I received some good news this week: The UCLA cardiologist is recommending to the transplant team that I be placed on the wait list. Since I had been told by the transplant surgeon and the head of the kidney-pancreas transplant team that they needed to hear from the cardiologist before making a decision, I am under the impression that they will go with her recommendation. Let's hope so.
In fact, just from a collegiality standpoint, I would think that the transplant team would have to go with her recommendation. If they said they needed to hear her opinion and then they disregard her opinion, that's a bit of a slap in her professional face. They wouldn't appreciate it if another doctor did the same to them. So I have a good feeling about this.
I had written several emails to my Kaiser nephrologist and cardiologist this week about the nuclear scan of my heart that was taken last week. In part, I asked that they ask their UCLA colleagues to stop "looking at the damn lab results and start looking at the person who is standing in front of them." I said that it is like looking at a student's failing grades and, on that basis, labeling him stupid, when all the while he's writing Nobel Prize-winning novels and findig a cure for cancer. This is analogous to my situation: The lab results paint a discouraging picture, but I feel great. I wrote that on Monday evening I walked two hours without stopping, without chest pain, without shortness of breath, whereas my walking companion, who is supposedly without health problems, was near-panting. I feel that I am in better shape than most of the women my age who don't have kidney disease. Certainly I am a better, healthier transplant candidate than someone who is 50+ pounds overweight and doesn't exercise!
Mystical experiences, yearnings, politics, little dramas, poetry, kidney dialysis, insulin-dependent diabetes, and opportunities for gratitude.
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About Me
- Heidi's heart
- Southern California, United States
- Perhaps my friend Mark summed me up best when he called me "a mystical grammarian." I am quite a mix--otherworldly, ethereal and in touch with "the beyond," yet prone to being very precise and logical, when need be. Romantic in the big-canvas meaning of the word, I see the world as an adventure, as a love poem, as a realm of beauty and wonder.
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1 comment:
This is great news, Heidi! You and your body deserve this.
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